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News
Collaborating with the CERA
How can I collaborate with the CERA? The Center for ELSI Resources and Analysis (CERA) is pleased to collaborate with individuals and organizations who share the mission of enhancing the production…- collaborate
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Video
Integrating ELSI and Genomics: Past, Present and Future (Keynote)
In 1990, the first Program Announcement for the ELSI Program solicited research proposals across nine domains in the intersection between human genetics and society. The idea was to sponsor research… -
Grant Abstract
Ethical and Social Implications of In Vitro Gametogenesis
Project Narrative ?Ethical and Social Implications of In Vitro Gametogenesis? In vitro gametogenesis (IVG) is an emerging technology that involves making an egg or a sperm cell outside of the body…- Address
- Age
- American
- assisted reproduction
- Attention
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Grant Abstract
Cost-effectiveness of Whole Genome Sequencing of Healthy Adults
PROJECT NARRATIVE The central goal of the proposed research is to determine the cost-effectiveness of integrating whole genome sequencing into the care of healthy adults. We will assess the health…- Address
- Adult
- Area
- base
- behavioral response
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Video
ELSIcon2022 Panel: Towards Justice- Race, ELSI, and Imagined Futures
ELSIcon2022 • Panel Session 17 • June 2, 2022 Melissa Creary, Kadija Ferryman ELSI has had to contend with the ways that the field has and has not adequately attended to race and racism.…- Live
- Panel
- Reflections on the ELSI field
- Gene therapy and gene editing
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Publication
Contributing to the on-going debate around the clinical application of preimplantation embryo selection based on polygenic risk scores (PGT-P)
European Journal of Human Genetics -
Publication
Innovating for a just and equitable future in genomic and precision medicine research
The American Journal of Bioethics -
Grant Abstract
Pulmonary Benefits of Cystic Fibrosis Neonatal Screening
Although cystic fibrosis (CF) is the most common, life threatening autosomal recessive genetic disorder of the white population, there are often delays in diagnosis and hence initiation of treatment…- adolescence (12-20)
- child (0-11)
- Cognition
- cost effectiveness
- Cystic Fibrosis
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Publication
The portrayal of dwarfism without skeletal dysplasia in art: Proportionate short stature due to growth hormone deficiency and other disorders
American Journal of Medical Genetics Part C: Seminars in Medical Genetics