In The Spotlight
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Video
January 2025 EFF: Public-Private Partnerships for Gene Therapies: What Does the Public Get?
Publicly-funded researchers frequently transfer their gene therapy and gene-editing medical research to venture capital-funded startups for clinical… -
News: Article
CERA Shout-Outs
We are thrilled to announce the launch of CERA Shout-Outs, a special quarterly section of our newsletter, debuting in January 2025. This is your… -
News: Spotlight
ELSI Abroad: Spotlight on South Korea
In this seventh installment of the ELSI Abroad series, CERA spoke with Ilhak Lee, M.D., Ph.D., and Hannah Kim, M.D., Ph.D., about ELSI research in…
In the Media
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The Atlantic
Genetic Discrimination is Coming for Us All
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The New York Times
Life Without Sickle Cell Beckons Boy Who Completed Gene Therapy
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MIT Technology Review
Why we need safeguards against genetic discrimination
ELSIhub Featured News
New Publications
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Journal Article
Bankruptcy, genetic information, and privacy - Selling personal information
by Sara Gerke, Melissa B. Jacoby, & I. Glenn Cohen
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Journal Article
Overcoming challenges associated with broad sharing of human genomic data
by Jonathan E. LoTempio & Jonathan D. Moreno
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Journal Article
Is germline genome-editing person-affecting or identity- affecting, and does it matter?
by Andrew McGee & Sinead Prince
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Latest
March 2025 EFF: Enhancing Genetic Screening Access through Community Partnerships in the Cleveland African American Prostate Cancer Project
Genetic screening is crucial for identifying genetic risk factors for disease, but marginalized groups often have low participation due to lack of access, awareness, and mistrust…