In The Spotlight
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News: Announcement
New Special Report of the Hastings Center Report
We are pleased to announce the publication of a new Hastings Center Report, special report, "Envisioning a More Just Genomics". The report, a collaboration between The Hastings Center and CERA, outlines opportunities to enhance justice in genomics,…
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Video
January 2025 EFF: Public-Private Partnerships for Gene Therapies: What Does the Public Get?
Publicly-funded researchers frequently transfer their gene therapy and gene-editing medical research to venture capital-funded startups for clinical… -
News: Article
CERA Shout-Outs
We are thrilled to announce the launch of CERA Shout-Outs, a special quarterly section of our newsletter, debuting in January 2025. This is your… -
News: Spotlight
ELSI Abroad: Spotlight on South Korea
In this seventh installment of the ELSI Abroad series, CERA spoke with Ilhak Lee, M.D., Ph.D., and Hannah Kim, M.D., Ph.D., about ELSI research in…
Upcoming Events
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Feb 14
ELSI Friday Forum
ELSI Friday Forum: Building Infrastructures to Enhance Community…
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Apr 7 - 8
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Sep 17 - 19
Conference
Precision Genomics for Human Health
In the Media
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The Atlantic
Genetic Discrimination is Coming for Us All
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The New York Times
Life Without Sickle Cell Beckons Boy Who Completed Gene Therapy
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MIT Technology Review
Why we need safeguards against genetic discrimination
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STAT News & Undark Magazine
The untold story of the Human Genome Project: How one man’s DNA became a pillar of genetics
New Publications
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Journal Article
Heritable polygenic editing: The next frontier in genomic medicine?
by Peter M. Visscher, Christopher Gyngell, Loic Yengo, & Julian Savulescu
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Journal Article
Experts' perspectives on human gene editing in Switzerland
by Jade Berlincourt, Sumanie Gächter, Effy Vayena, & Kelly E. Ormond
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Latest Webinar
“I Have Data, I Have Science Behind My Treatment Plan”: A Comparative Qualitative Study of Clinician and Patient Views and Experiences with Pharmacogenomic Testing for Depression
ELSI • GC Exchange, hosted by The Jackson Laboratory for Genomic Medicine, is an educational series designed for genetic counselors.