Research Tools

Lehmann and colleagues created a list of questions for academic researchers and industry researchers to consider prior to forming an academic-industry partnership for the purposes of managing conflicts of interest.

Schairer and colleagues created 4 Narrated Slideshow Videos that provide an introduction to gene drive technologies for lay audiences. Each narrated video is between 5-6 minutes. Slide Show 1, "Mosquitoes in California" covers information on mosquitoes in CA and basic facts about mosquitos. Slide Show 2, "Genetic Engineering for Mosquito Control", offers a comparison of genetically engineered (GE) sterile male mosquitoes with GE gene drive mosquitoes. Slide Show 3, "Modifying Mosquitoes with Gene Drives", includes a comparison of gene drive mosquitoes designed to reduce/suppress populations versus gene drive mosquitoes designed to alter populations. Slide Show 4, "Controlling Gene Drives", outlines different control strategies for gene drive mosquitoes.

Schairer and colleagues created this focus group guide which includes moderator questions that evaluate the effectiveness of a set of 4 narrated slide show videos about gene drive technologies for lay audiences (see this database foe the videos).

Rubanovich and colleagues created the DNA Ancestry Testing Survey to examine the impact of DNA ancestry test results on perception of ethnic and racial identities. The 13 question survey was sent to study participants after they had received DNA ancestry results and isntructions on how to interpret the information. Two of the questions are open-ended and the others ask participants to choose between three responses (e.g., Yes, No, Somewhat).

Morton, Bixenman, & Wellis designed this fifteen-item survey to measure blood donors' interest in participating in a hypothetical study, similar to the All of Us Research Program, which seeks diverse participants to ensure equitable benefits of precision medicine research.

To understand challenges involved in the use of personal health data (PHD) in research, Bietz and colleagues created Health Data Exploration Survey Questions (Individuals) that examines the experiences and attitudes of early adopters of self-tracking health data. To access the survey, click on the supplementary materials link at the bottom of the linked article and open the downloaded file folder.

Bietz and colleagues created the Health Data Exploration Survey Questions (Researchers) to examine the experiences with and attitudes about self-tracking data among researchers who could potentially use personal health data as part of their research. To access the survey, click on the supplementary materials link at the bottom of the linked article and open the downloaded file folder.

Kim, Joseph, and Ohno-Machado created the California Consumers’ Views of Data Sharing for Healthcare And Research Survey to assess technology use, opinions about electronic health records and resesarch using them, perceptions of their health status, and other topics. Please check your downloads folder for the survey after you click the link to this content.

This semi-structured interview guide provides physicians with scenarios in which adult and pediatric patients receive unsolicited genomic results and elicits their views about the need for provider support materials, the involvement of genetic specialists in the disclosure process, concerns about liability, and other topics.