Research Tools

This survey assesses support for and willingness to take part in a cohort study, aspects of participation, study oversight (including participant involvement in governance), and the return of information to participants. In the original study, respondents were first shown a description of the cohort study and told that participants might get access to the study information collected about their health.

Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation with researchers, ethicists, community-based organisation staff, and community engagement practitioners. It can be used to support the sharing of power in health research priority-setting. The toolkit should be used to develop a plan for priority-setting in a global health research project. Academic researchers and their community partners should complete Worksheets 1 to 4 as a team.

Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation with researchers, ethicists, community-based organisation staff, and community engagement practitioners. It can be used to support the sharing of power in health research priority-setting. The toolkit should be used to develop a plan for priority-setting in a global health research project. Academic researchers and their community partners should complete Worksheets 1 to 4 as a team.

Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation with researchers, ethicists, community-based organisation staff, and community engagement practitioners. It can be used to support the sharing of power in health research priority-setting. The toolkit should be used to develop a plan for priority-setting in a global health research project. Academic researchers and their community partners should complete Worksheets 1 to 4 as a team.

Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation with researchers, ethicists, community-based organisation staff, and community engagement practitioners. It can be used to support the sharing of power in health research priority-setting. The toolkit should be used to develop a plan for priority-setting in a global health research project. Academic researchers and their community partners should complete Worksheets 1 to 4 as a team.

Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation with researchers, ethicists, community-based organisation staff, and community engagement practitioners. It can be used to support the sharing of power in health research priority-setting. The toolkit should be used to develop a plan for priority-setting in a global health research project. Academic researchers and their community partners should complete Worksheets 1 to 4 as a team.

Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation with researchers, ethicists, community-based organisation staff, and community engagement practitioners. It can be used to support the sharing of power in health research priority-setting. The toolkit should be used to develop a plan for priority-setting in a global health research project. Academic researchers and their community partners should complete Worksheets 1 to 4 as a team.

Flatau and colleagues developed this survey to assess informational preferences among German patients, healthcare professionals, and members of the public in a genetic testing context. The survey assesses participant characteristics, preferences about the return of genetic results, attitudes about physician disclosure, and willingness to share test results.

Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine prior to taking an 8-week course on genomics and personalized medicine.

Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine after taking an 8-week course on genomics and personalized medicine. This survey is for students who had not undergone personal genome testing.