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Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

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  • This bill requires coverage for a mammogram at the age and intervals considered medically necessary by the woman's health care provider for women under 40 years of age and having a family history of breast cancer, prior personal history of breast cancer, positive genetic testing, or other risk factors. This bill also requires coverage for a comprehensive ultrasound screening of an entire breast or breasts if a mammogram demonstrates heterogeneous or dense breast tissue based on the Breast Imaging Reporting and Data System established by the American College of Radiology or if the woman is at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing, or other indications as determined by a woman's health care provider. Signed by the Governor August 24, 2007. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Illinois
    • mammogram
    • breast cancer
    • genetic predisposition
    • insurance coverage
    • health insurance coverage

  • This bill amends the Genetic Information Privacy Act and makes technical changes to the section of the law pertaining to employers. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Illinois
    • genetic information privacy act
    • genetic privacy
    • employment
    • employment nondiscrimination
    • Privacy

  • This bill was introduced as an amendment to the Genetic Information Privacy Act. All language was stricken in a senate amendment and new language was added related to firearms. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Illinois
    • genetic information privacy act
    • genetic privacy
    • employment
    • Privacy

  • This bill was introduced as an amendment to the Genetic Information Privacy Act. All language was stricken in a senate amendment and new language was added related to cancer drugs. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Illinois
    • cancer drugs
    • genetic information privacy act
    • Privacy

  • This bill amends the Genetic Information Privacy Act. The bill adds and amends definitions under the law, makes changes to the employment provisions, adds requirements to be consistent with federal laws such as GINA, and further specifies prohibited actions by covered entities. Monetary penalties are increased, and a private right of action is afforded to any person alleging a violation of the law. The bill allows local governments to enact genetic privacy measures equal to or greater than the protections provided under state law. Approved by the Governor August 26, 2008. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Illinois
    • genetic information privacy act
    • genetic privacy
    • employment nondiscrimination
    • Privacy

  • This bill deletes provisions in the statutes related to pre-existing conditions and the treatment on genetic information as such a condition. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Illinois
    • genetic predisposition
    • pre-existing condition
    • health insurance nondiscrimination

  • The Department of Healthcare and Family Services must authorize the provision of, and payment for, a baseline mammograms for women 35-39 and mammograms at certain intervals for women over 40. Women under 40 with risk factors such as positive genetic testing should receive mammograms as medical necessary. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Illinois
    • Department of Healthcare and Family Services
    • mammograms
    • insurance coverage
    • genetic predisposition
    • health insurance coverage

  • Amends the Genetic Information Privacy Act to add a provision related to electronic health records. The bill states that the disclosure of genetic information, when allowed, must be performed in accordance with the minimum necessary standard when required under HIPAA. Approved by the Governor August 25, 2014. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Illinois
    • genetic information privacy act
    • genetic privacy
    • HIPAA
    • Privacy

  • Amends the Genetic Information Privacy Act. Makes a technical change in a section concerning the short title. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Illinois
    • genetic information privacy act
    • genetic privacy
    • Privacy

  • Amends the School Code to add provisions concerning student and educator data privacy. Protections cover biometric records, defined to include DNA. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Illinois
    • biometric record
    • genetic privacy
    • Privacy