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Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

271 - 280 of 1122 Additional Resources

  • Creates a parent's right to consent in writing before any record of the minor child’s blood or deoxyribonucleic acid is created, stored, or shared, unless authorized pursuant to a court order or an ongoing criminal investigation. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Kentucky
    • written consent
    • genetic privacy
    • criminal investigation

  • Requires health benefit plans to cover any genetic test for cancer risk recommended by a physician, physician's assistant, genetic counselor or nurse if the recommendation is consistent with genetic testing guidelines of the National Comprehensive Cancer Network. Signed by the Governor on May 19, 2019. Effective January 1, 2020. Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Kentucky
    • health insurance coverage
    • genetic testing
    • cancer risk
    • health benefit plans

  • Requires a health facility that provides perinatal care inform each patient, upon admission regarding the patient's right to to be free of discrimination on the basis of various factors, including genetic information. 1/07/20 To House Health and Family Services Committee. Bill Status: Pending

    • state bill
    • bill
    • bill status pending
    • Kentucky
    • perinatal care
    • genetic information

  • Amends language pertaining to pre-existing condition exclusions in group health insurance. Prohibits group health benefit plan coverage from adjusting premium or contribution amounts for a group covered under the plan on the basis of genetic information. 2/28/20 floor amendment (2) filed. Bill Status: Pending

    • state bill
    • bill
    • bill status pending
    • Kentucky
    • health insurance nondiscrimination
    • group health insurance
    • health benefit plan
    • insurance coverage

  • Permits a patient to request and receive results of his or her genetic or genetic-related tests. Requires results of genetic or genetic-related tests to be reported and transmitted to a patient who requested the test. Permits a medical laboratory to collect a specimen from a patient for a genetic or genetic-related test requested by the patient. 3/19/2020 to Senate Health & Welfare. Bill Status: Pending

    • state bill
    • bill
    • bill status pending
    • Kentucky
    • patient request

  • Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. 4/15/2020 To Senate Judiciary Committee. Bill Status: Pending

    • state bill
    • bill
    • bill status pending
    • Kentucky
    • Parents
    • written consent
    • parental consent

  • Individual or group health benefit plan or insurers may not (1) deny, cancel, or refuse to renew the benefits or coverage, or vary the premiums, terms, or conditions for the benefits or coverage, for any participant or beneficiary based on a genetic test for which symptoms have not manifested or a request or receipt of genetic services or (2) disclose any genetic test without prior authorization for each disclosure. A group or individual health benefit plan or insurer or a disability income insurer may not request or require the disclosure of any genetic test about a participant or beneficiary without prior written authorization for each disclosure.

    • state statute
    • Kentucky
    • health insurance nondiscrimination
    • disability
    • health benefit plan

  • An insurer that offers health benefit plan coverage in the small group, large group, or association market may not establish rules for eligibility based on health status-related factors, including genetic information. Health insurers offering individual health benefit plan coverage may not impose a pre-existing conditions exclusion based on genetic information in the absence of a diagnosis.

    • state statute
    • Kentucky
    • health insurance nondiscrimination
    • health benefit plan
    • health benefit plan coverage
    • Diagnosis

  • Requires health benefit plans to cover any genetic test for cancer risk recommended by a physician, physician's assistant, genetic counselor or nurse if the recommendation is consistent with genetic testing guidelines of the National Comprehensive Cancer Network.

    • state statute
    • Kentucky
    • health insurance coverage
    • genetic testing
    • National Comprehensive Cancer Network
    • cancer risk

  • Public agencies and nonaffiliated third parties must implement, maintain, and update security procedures and practices to safeguard personal information, including a biometric or genetic print. Bill Status:

    • state statute
    • Kentucky
    • genetic privacy
    • biometric information
    • security procedures
    • biometric print
    • genetic print