ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our April 2025 set explores ethical considerations of prenatal gene editing for neurodevelopmental diseases, factors that influence parents’ decisions regarding pediatric genetic testing, and more. If you would like your ELSI-relevant review featured in this communication, please contact us at [email protected].
ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our December 2024 set explores ethical aspects of human genome research in sports, payer perspectives on genomic testing, and more. If you would like your ELSI-relevant review featured in this communication, please contact us at [email protected].
This course explores ethical and social issues as they relate to genetics and genomics in both clinical and public health contexts.
This course developed by Karen Schindler explores the ethical, lega, and social implications of emerging genetic technologies.
The integration of genetics into clinical practice offers the potential to revolutionize healthcare through personalized medicine. Yet, it also risks exacerbating existing health disparities if steps are not taken to provide access to genetic testing and follow-up care for medically underserved populations which may include racial and ethnic minorities, under- and uninsured individuals, unhoused persons, low-income families, rural communities, and people with disabilities, among other marginalized groups.
ELSIcon2024 • Paper • June 12, 2024
Authors:
Jannieke Simons, MA (she/her/hers) - University Medical Center Utrecht (Netherlands)
ELSIcon2024 • Paper • June 12, 2024
Authors:
Speaker: Robert I. Field, JD, MPH, PhD - Drexel University
ELSIcon2024 • Paper • June 12, 2024
Authors:
Speaker: Katherine Hendy, PhD (she/her/hers) - University of Michigan
ELSIcon2024 • Paper • June 12, 2024
Authors:
Speaker: Sukh Makhnoon, PhD, MS - University of Texas Southwestern Medical Center
ELSIcon2024 • Paper • June 11, 2024
Authors:
Speaker: Adam Buchanan, MS, MPH, CGC (he/him/his) – Geisinger College of Health Sciences