Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and factors affecting views on trustworthiness of PMR among people with disabilities. This study proposes to engage with people with mobility, visual and hearing disabilities?the most common conditions in the U.S.?across racial/ethnic communities and with translational genomic researchers, the leaders in PMR, to close this gap.
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was developed for the VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research, with health communications experts at Booster Shot Media. In the VALUES project, the videos were shown ahead of focus group discussions with a multilingual set of research participants about the use of their EHR data and biospecimens in precision medicine research.
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was developed for the VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research, with health communications experts at Booster Shot Media. In the VALUES project, the videos were shown ahead of focus group discussions with a multilingual set of research participants about the use of their EHR data and biospecimens in precision medicine research.
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was developed for the VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research, with health communications experts at Booster Shot Media. In the VALUES project, the videos were shown ahead of focus group discussions with a multilingual set of research participants about the use of their EHR data and biospecimens in precision medicine research.
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was developed for the VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research, with health communications experts at Booster Shot Media. In the VALUES project, the videos were shown ahead of focus group discussions with a multilingual set of research participants about the use of their EHR data and biospecimens in precision medicine research.
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was developed for the VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research, with health communications experts at Booster Shot Media. In the VALUES project, the videos were shown ahead of focus group discussions with a multilingual set of research participants about the use of their EHR data and biospecimens in precision medicine research.
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was developed for the VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research, with health communications experts at Booster Shot Media. In the VALUES project, the videos were shown ahead of focus group discussions with a multilingual set of research participants about the use of their EHR data and biospecimens in precision medicine research.
This white paper prepared by Det Norske Veritas (DNV GL), a quality assurance and risk management company, identifies 6 barriers to the uptake of dynamic consent in clinical genetics.