Clarke and colleagues developed the Genetic Knowledge Index using a combination of existing measures, including one from another CSER project for use in a study that assessed willingness to pay for expanded carrier screening. The index is a set of 9 yes or no questions includings items that assess participant understanding of the test results.

This survey was designed for use with the 10-minute video, Whole Genome Sequencing and You (available in this database). It can be used to collect demographic information and participant attitudes toward WGS.

This survey asks participants to supply demographic information (including educational level, household income, and race), rate their familiarity with precision medicine terms, indicate their attitudes to precision medicine, identify sources of medical information and potential barriers to participation in research, and complete a measure of trust in research and researchers. The survey is available in Table 1 and in the supporting information of the linked publication.

This survey that measures genomics knowledge and attitudes toward the role of public health professionals in implementing public health genomics for public health professionals. The survey is designed to be administereed to public health professionals. It includes items that elicit professional details, professional activity, knowledge of and attitudes toward genetic testing and genetic services delivery, and attitudes toward the role of public health professionals in public health genomics.

A pre- and post-test questionnaire that measures changes in the knowledge and attitudes of physicians who have been administered pharmacogenetic testing is available in the supporting information section of the linked publication in both English and Korean. The survey includes items for demographic information, clinical history, attitudes towards adverse drug reactions, experience with clinical genomics, attitudes toward and experience with pharmacogenomics, price expectations for pharmacogenomics testing, and interpretation of the value of the pharmacogenomics report.

The CSER Organizational Readiness to Change Assessment measures the readiness of healthcare systems to implement clinical sequencing. It is comprised of 19 items from an existing measure, the ORCA (Organizational Readiness to Change Assessment, and should be administered at 0-8 weeks since study initiation to six to ten executives, administrators, managers, or clinicians at each site participating in your project.

The survey begins with questions about attitudes toward research, physicians, and health systems, interspersed with the 3 videos and questions to assess understanding of ROMP concepts.

The PRIM&R Member Survey was used in the ROMP study to elicit the perspectives of a random selection of human subjects research professionals from the Public Responsibility in Medicine and Research membership list on the ethical aspects of activities related to evaluating and improving standard medical practices, including comparative effectiveness research and quality improvement in the context of learning health system.

This self-administered, web-based survey using an experimental between-group design to compare the effects of four informational aids on respondents’ understanding of core aspects of research on medical practices, including variation in medical practice and the meaning of randomization.

The CSER Organizational Readiness to Change Assessment measures the readiness of healthcare systems to implement clinical sequencing. It is comprised of 19 items from an existing measure, the ORCA (Organizational Readiness to Change Assessment, and should be administered at 0-8 weeks since study initiation to six to ten executives, administrators, managers, or clinicians at each site participating in your project.