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This survey assesses support for and willingness to take part in a cohort study, aspects of participation, study oversight (including participant involvement in governance), and the return of information to participants. In the original study, respondents were first shown a description of the cohort study and told that participants might get access to the study information collected about their health.

This 20-item survey by Guerrini and colleagues can be used to assess public opinion on police access to genetic genealogy databases. The survey assesses participant characteristics and views on the purposes that law enforcement should be allowed to search genealogical websites and social media accounts, whether law enforcement should be allowed to require direct-to-consumer testing companies to reveal information about their customers, and other topics.

Ploug and Holm developed this choice based conjoint survey to record participant preferences about whole genome and exome sequencing results reporting in three scenarios with seven different attributes. The English-language survey was developed for use with the general, Danish population. An example of a choice task with 3 concepts is available in Figure 1 of the linked publication.

Sayeed and colleagues developed this survey for use in the Project Baseline Health Study, which collected a variety of participant data, including genetic test results. The survey includes questions about which results participants would be willing to share with clinical professionals (e.g., doctor, nurse), confidence in the safety of their personal health information, perception of the potential benefits, feelings upon getting results, interest in future test results, and other topics.

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