Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine after taking an 8-week course on genomics and personalized medicine. This survey is for students who had not undergone personal genome testing.
Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine prior to taking an 8-week course on genomics and personalized medicine.
Flatau and colleagues developed this survey to assess informational preferences among German patients, healthcare professionals, and members of the public in a genetic testing context. The survey assesses participant characteristics, preferences about the return of genetic results, attitudes about physician disclosure, and willingness to share test results.
This survey assesses support for and willingness to take part in a cohort study, aspects of participation, study oversight (including participant involvement in governance), and the return of information to participants. In the original study, respondents were first shown a description of the cohort study and told that participants might get access to the study information collected about their health.
This survey can be used to collect respondent characteristics, attitudes about the genetic modification (GM) of cattle, the perceived effectiveness of GM modifications, knowledge of GM, and attitudes toward animals.
This 20-item survey by Guerrini and colleagues can be used to assess public opinion on police access to genetic genealogy databases. The survey assesses participant characteristics and views on the purposes that law enforcement should be allowed to search genealogical websites and social media accounts, whether law enforcement should be allowed to require direct-to-consumer testing companies to reveal information about their customers, and other topics.
This survey assesses views on aspects of the consent process, including willingness to share medical information and DNA for different research purposes, including controversial areas of research.
Ploug and Holm developed this choice based conjoint survey to record participant preferences about whole genome and exome sequencing results reporting in three scenarios with seven different attributes. The English-language survey was developed for use with the general, Danish population. An example of a choice task with 3 concepts is available in Figure 1 of the linked publication.
Sayeed and colleagues developed this survey for use in the Project Baseline Health Study, which collected a variety of participant data, including genetic test results. The survey includes questions about which results participants would be willing to share with clinical professionals (e.g., doctor, nurse), confidence in the safety of their personal health information, perception of the potential benefits, feelings upon getting results, interest in future test results, and other topics.
Clarke and colleagues created this measure of support of science and technology (SST) for use in a study that assessed willingness to pay for expanded carrier screening. The measure is a set of 10 yes or no questions that assesses trust in medicine, importance of carrier status results, and willingness to share test results with clinicians.