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This study investigated the efficacy and impact of prenatal education about newborn screening and use of residual dried blood spots (DBS) in research. The REDCap codebook for this study outlines each…

This study evaluated public opinion about the policies and practices relevant to the retention and use of residual bloodspots for biomedical research. The REDCap codebook for this study outlines each…

This survey was administered to pediatricians' during pediatric grand rounds to assess understanding of children's health rights. The REDCap codebook for this study outlines each data…

Mowery and colleagues conducted a descriptive study characterizing the influence of genetic testing on redirecting care for neo-nates. The REDCap codebook for this study outlines each data element of…

The aim of this project was to gain understanding of the implications of alternate concepts of genetic causation for theoretical work in behavior genetics and for interventions and therapies arising…

Case and colleagues developed an educational intervention (CRiTICS) for providers' communication of a positive prenatal genetic screening result. The REDCap codebook for this study outlines…

This consent form was used for the Utah Genome Project. The form describes the specific protected health information that would be collected for the study, how the information would be used, and how…