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News
ELSI in Review • January 2025
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our January 2025 set explores public perceptions of genetic…- gene therapy
- CRISPR-Cas9
- Polygenic risk scores
- Biobanking
- Artificial intelligence
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Scholar
Onochie Okoye
- Best practices for clinical and research ethics consultation
- Bioethics Education
- Clinical Ethics
- Ophthalmology
- genetic disorder diagnosis
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Video
December 2024 EFF: Building a Diverse ELSI Workforce: What does this mean and how should we do it?
Bioethics as a field was catalyzed by grave injustices such as the US Public Health Service Untreated Syphilis Study at Tuskegee. Similarly, a major rationale for ELSI was to address the injustices…- diversity
- challenges
- Engaging diverse communities
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Scholar
Terese Knoppers
- Health and healthcare inequalities
- access to healthcare
- Qualitative research
- Community Engagement
- Stakeholder Engagement
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Grant Abstract
You Gave Consent but Do I Have Permission?
PROJECT NARRATIVE The proposed research is relevant to ethical, legal, and social implications of genomic information sharing as it focuses on evaluating information models which support stewardship… -
Grant Abstract
The Moana Project: The Connection Between Pacific Islanders and Genetics
PROJECT NARRATIVE The Moana Project is dedicated to fostering community engagement and dialogue about genetic research within the Pacific Islander community. Our objective is to facilitate the… -
Grant Abstract
Gene Selection for Newborn Sequencing Studies
PROJECT NARRATIVE To add genomic sequencing into public health newborn screening (NBS) in a way that maximizes benefits (e.g., access to life-saving treatments) and minimizes harm (e.g., treating… -
Grant Abstract
Supporting pregnant patients as they face a changing landscape of prenatal genetic tests and post-diagnosis options
PROJECT NARRATIVE The goal of this study is to generate supportive scientific evidence for strategies that will facilitate informed decision-making about PS&D by diverse populations of pregnant… -
Grant Abstract
Supporting just-in-time consent for prenatal screening in diverse populations
PROJECT NARRATIVE This study will compare a novel, mobile-friendly, just-in-time consent model to current ways of offering prenatal genetic screening. The clinical trial will recruit at three diverse…