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Research Tool
Semi-structured Interview Guide, Recall by Genotype (RbG) Research
This topic guide can be used to interview research participants on their perceptions of recall by genotype research, which recruits on the basis of genotype. Topics include understandings of RbG… -
Research Tool
Public Attitudes Toward Genetic Modification in Dairy Cattle, Survey
This survey can be used to collect respondent characteristics, attitudes about the genetic modification (GM) of cattle, the perceived effectiveness of GM modifications, knowledge of GM, and attitudes… -
Research Tool
Semi-structured Interview Guide, International Health Research Collaborations
This interview guide was developed to elicit African researchers experiences in international health research consortia; perceived benefits and risks of participation, and their recommendations for… -
Research Tool
Genetic Knowledge Index
Clarke and colleagues developed the Genetic Knowledge Index using a combination of existing measures, including one from another CSER project for use in a study that assessed willingness to pay for… -
Research Tool
Support of Science and Technology Scale
Clarke and colleagues created this measure of support of science and technology (SST) for use in a study that assessed willingness to pay for expanded carrier screening. The measure is a set of 10… -
Research Tool
Preferences and Expectations for Return of Individual Research Results Survey
Sayeed and colleagues developed this survey for use in the Project Baseline Health Study, which collected a variety of participant data, including genetic test results. The survey includes questions… -
Research Tool
Choice Based Conjoint (CBC) Survey, Preferences for Information About Incidential Findings
Ploug and Holm developed this choice based conjoint survey to record participant preferences about whole genome and exome sequencing results reporting in three scenarios with seven different… -
Research Tool
Consent Preferences of UK Research Volunteers for Genetic and Clinical Studies Survey
This survey assesses views on aspects of the consent process, including willingness to share medical information and DNA for different research purposes, including controversial areas of research. -
Research Tool
Trust in Medical Researchers (Full and Short Scales)
Hall and colleagues report the development and validation of 12-item survey and a short form (4-item) survey designed to measure trust in medical researchers. Final scale items are available in Table… -
Research Tool
Trust in Medical Researchers Scale
Mainous and colleagues report the development and validation of the 12-item Trust in Medical Resesearchers Scale. This scale is designed to be self-administered. Several scale items assess concerns…