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The Disability Rights Critique of Technologies that Eliminate Human Genetic Variation
The development and use of an expanding range of medical technologies that yield genetic information about embryos and fetuses has raised ethical questions about whether and how this increasingly… -
News
ELSI in Review • April 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our April 2023 set explores AI innovations in the Tanzanian… -
Collection
How Do We Diversify Human Genomics Research?
The lack of diversity in human genomics research and reference datasets is a known problem, with real-life consequences, but the path forward remains elusive. Solutions to the problem of sampling…- genetic diversity
- Admixture
- anti-racism
- FAIR data principles
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News
ELSIhub Resources for Educators
ELSIhub strives to provide our audience with scholarship, educational content, webinars, community news, and resources focused on the ethical, legal, and social implications (ELSI) of genetics and… -
News
AJOB Seeks Open Peer Commentaries for the ELSI Congress 2022 Special Issue
We are pleased to announce that five articles have been accepted for publication in the special ELSI Congress 2022 issue of the American Journal of Bioethics (AJOB): Who Decides What is… -
News
ELSI in Review • March 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our March 2023 set explores the ethics of gene therapy,… -
News
Joy Boyer, Reflections on a Career in ELSI
An exceptional team of program directors administers the ELSI Research Program at the National Human Genome Research Institute (NHGRI), the ongoing, extramural funding program that has served as a… -
News
Special Issue Call for Papers: Envisioning a More Just Genomics
Deadline Extended: April 7th, 2023 at 11:59 EST The Center for ELSI Resources and Analysis (CERA) and The Hastings Center are sponsoring a special issue of the Hastings Center Report that looks…- call for submissions
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News
ELSI in Review • February 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2023 set explores concerns about the… -
Collection
Genomics <em>of</em> Education <em>in</em> Education: ELSI Concerns about Genomic Prediction in Educational Settings
Polygenic scores (PGS) for educational traits and outcomes (e.g., math ability, reading ability, and educational attainment) are currently available to the public via direct-to-consumer genetic…- Polygenic scores
- precision education
- learning disabilities
- Pygmalion effect