Topics

Genetic counseling provides the translational link between the new technologies of testing and the ability of individuals to engage in a process of informed decision-making. The dense and abstract…

Ethical and Cultural Implications of Specimen Banking among Alaska Native People is proposed by Principal Investigator Ruth A. Etzel, M.D., Ph.D. The aims of this project are to: 1) determine the…

In the Southcentral Foundation Research Center for Alaska Native Health (RCANH), SCF will position itself to achieve the chief purpose of NARCH - "to reduce health disparities, enhance…

A range of potential solutions has been proposed to the confidentiality challenges in genome research and how best to proceed in this era of "big data" is not known. Some advocate measures…

Although cystic fibrosis (CF) is the most common, life threatening autosomal recessive genetic disorder of the white population, there are often delays in diagnosis and hence initiation of treatment…

This project will study factors influencing physician's adoption of new genetic tests and their attitudes towards how tests should be provided. It will also begin to explore consumer attitudes.…

The objective of this project is to determine the extent to which physician preparedness and commercial interest affect the diffusion of genetic tests. With an insufficient number of trained…

This project will first identify and analyze a series of specific ethical concerns or questions that have, or will arise as a consequence of the HGP, including genetic screening and diagnosing…

The purpose of this project is to support a coordinated and wide-ranging research project focusing on the legal and ethical issues raised by the human genome project. The nation's leading…

This workshop will bring together 22 distinguished individuals including experts in the fields of ethics, law and the social sciences as well as investigators playing key roles in the human genome…