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Grant Abstract
Genome Mapping: Implications for Health and Life Insurance
This project will examine the moral basis of, and legal and policy framework for, health and life insurance in light of the increase that the HGP is expected to generate in genetic screening capacity…- Ethics
- genetic mapping
- Genetics
- handbook
- health economics
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Grant Abstract
Genetic Testing in the Ashkenazi Jewish Population
The objective of this research is to conduct and evaluate a pilot program for the simultaneous screening of carriers for CF, Tay Sachs Disease (TSD) and Gaucher's Disease (GD) in the Ashkenazi…- Amniocentesis
- Anxiety
- chorionic villus sampling
- Cystic Fibrosis
- Cytogenetics
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Grant Abstract
Academic-Industry Relationships in Genetics
This study will use survey and case study methodologies to examine Academic-Industry Relations (AIRs) in genetics and related fields. Results will contribute to assessment of: 1) how AIRs have…- biotechnology
- Ethics
- Genetics
- governmental health /scientific organization
- Health
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Grant Abstract
The Secret of Life
The Secret of Life is a series of eight, 60-minute programs for PBS broadcast with extensive educational and outreach materials. The goal of the program is to make molecular biology intelligible to…- curriculum
- health science research
- Informatics
- Information Dissemination
- Molecular Biology
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Grant Abstract
"The Stigma of Disease: Implications of Genetic Testing"
The purpose of this project is to investigate the stigmatization of the sick as it applies to new developments in genetic testing, screening, and diagnostics. Using the methods of medical and social…- stigma
- genetic testing
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Grant Abstract
Human Genome Project Education and Outreach
Educational objectives of the Human Genome Mapping Center at Stanford University will be achieved by an educational outreach program designed to provide the public with a basic, working understanding…- curriculum
- Ethics
- genetic disorder
- genetic disorder diagnosis
- genetic mapping
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Grant Abstract
Human Genome Education Model Program
This project is a multi-step cooperative educational effort to target both consumers and multidisciplinary health professionals for education on the Human Genome Project and its ethical, legal, and…- behavioral /social science research tag
- education evaluation /planning
- Ethics
- Genetic Models
- Genome
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Grant Abstract
Human Genome Education Model Project II
Building on the experiences and products of the Human Genome Education Model Project (1993-1997), Georgetown University Child Development Center and the Alliance of Genetic Support groups plan to use…- education evaluation
- planning
- Ethics
- Genetic Models
- Genome
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Grant Abstract
Ethical Guidance for Family Studies in Human Genetics
This project will develop ethical guidance for presymptomatic testing for autosomal dominant, late onset diseases for which genetic probes are available (familial Alzheimer disease, amyotrophic…- Alzheimer's Disease
- amyotrophic lateral sclerosis
- autosomal dominant trait
- Belief
- case history
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Grant Abstract
Prenatal Genetic Testing -- Provider-Patient Communication
In this project a random sample of 60 young obstetric providers in Maryland and 10 pregnant women age 33 and over per provider (nested design) will be selected to accomplish three goals. First, we…- allied health personnel
- Ethics
- gender difference
- Genetic Counseling
- genetic disorder diagnosis