Human Genome Education Model Project II

Building on the experiences and products of the Human Genome Education Model Project (1993-1997), Georgetown University Child Development Center and the Alliance of Genetic Support groups plan to use the collaborative (consumer and health professional) education model to educate allied health professionals through their respective national organizations. The overall goal is to derive optimal benefit from development of the Human Genome Project for allied health professionals and the clients they serve. The specific aims are: 1) to conduct surveys to assess needs, determine education priorities, and identify resources of the respective organizations; 2) to use information from the surveys to adapt the collaborative education model to educate and sensitive health professionals about genetics, the HGP and its ethical, legal, and psychosocial issues and implement education for national staff, practitioners, and educators; and 3) to evaluate each level of education and disseminate information about the project. HuGEM II is designed to be carried out over a three-year period. An Advisory Committee will provide expertise in medical genetics, ethics, law, consumer issues, social policy, and health education.