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Given the current and anticipated capabilities to perform prenatal diagnosis, the medical profession, and society more broadly, must decide how these technologies should be used. Specifically, what…

The ELSI program, together with NIGMS, provided funding for an American Indian and Alaska Native Genetics Research Policy Formulation Meeting, which was held in Rio Rancho, New Mexico on February 7-9…

The proposed research is a comprehensive assessment of the ethical, legal and social implications of non-forensic identity testing, with a special focus on implications for families. The research…

The Family as Context in Clinical Genetics Project (FCCGP) is an innovative Web-based curriculum that focuses on the integration of the new genetic knowledge into clinical practice and uses the…

Advances in the molecular genetics of cellular aging raise the prospect of intervening in the human aging process to dramatically extend the human life span. The development of such interventions…

This 2-part project will enhance the usefulness of the existing DNA Patent Database and perform a pilot study of the licensing practices and policies of academic institutions. Specifically, it will…

Sensorineural hearing loss (SNHL) is a heterogeneous group of disorders that collectively represent the most common congenital deficit in humans. More than 100 genes have been implicated in SNHL. Our…

Genetic counseling provides the translational link between the new technologies of testing and the ability of individuals to engage in a process of informed decision-making. The dense and abstract…

Ethical and Cultural Implications of Specimen Banking among Alaska Native People is proposed by Principal Investigator Ruth A. Etzel, M.D., Ph.D. The aims of this project are to: 1) determine the…

In the Southcentral Foundation Research Center for Alaska Native Health (RCANH), SCF will position itself to achieve the chief purpose of NARCH - "to reduce health disparities, enhance…