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This is a qualitative, ethnographic study that is designed to generate a number of empirical examples of community review in action. Project investigators have established a working relationship with…

This project explores the feasibility of producing messages about human genetic variation that are non-discriminatory in their impact on public attitudes. Toward this end it pursues three research…

The proposed research seeks to analyze arguments in the literature of philosophy, theology and public policy that take the genome in its integrity, contingency, or historical authenticity to be what…

The proposed research will study whether there should be any limits placed on life insurers' use of predictive genetic information in risk classification or medical underwriting. The research…

The primary goal of this pilot project is to examine the relationship between BRCA1 genetic counseling communication patterns and cancer-related health behaviors and psychosocial adjustment of an…

This anthropological study is designed to: (1) determine whether subjects' beliefs about the hereditary aspects of DN influence participation in genetic family studies (GFS), (2) explore…

The purpose of this study is to explore the interplay of parents' beliefs and behaviors in order to identify information management styles used by families in which there is a child with a…

"Personalized genomic medicine" (PGM) is being promoted as a "new paradigm for health care" and a major goal for translational genomic research (TGR). In addition to overcoming…

The Fred Friendly Seminars are producing a television series, entitled Our Genes/Our Choices, as the centerpiece of a vigorous public communication and education effort designed to engage the…

This project provides support for the Biennial Symposium Series on Minorities and Cancer. The overall goals of the symposium series are to: -exchange the latest scientific and treatment information…