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Grant Abstract
Community Genetics and Ethics Projects
The goal of the Community Genetics and Ethics Project (CGEP) is to enhance community-based participation in consideration of the ethical, legal and social implications (ELSI) of the Human Genome…- education evaluation /planning
- Ethics
- Genetics
- meeting /conference /symposium
- rural area
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Grant Abstract
African American Community Review of Genetic Research
This is a qualitative, ethnographic study that is designed to generate a number of empirical examples of community review in action. Project investigators have established a working relationship with…- African American
- Clinical Research
- community
- culture
- Ethnic group
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News
Engaging Underrepresented Communities in Research
Attention to the unique inclusion and engagement needs of understudied populations is of critical importance to the advancement of genomic and precision medicine research, the elimination of health… -
Grant Abstract
Ethics: A Bridge for Communities and Scientists
This proposal responds to the need for a sustained dialogue that promotes public understanding of the social, ethical and legal implications of the gene-environment interactions associated with…- asbestos
- behavioral /social science research tag
- Clinical Research
- education evaluation /planning
- Environmental Exposure
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Grant Abstract
ELSI Research in Two Native American Communities
The specific aims of this project are: to identify the ethical, legal, and social implications of the HGP from the perspectives of two Native American communities, with particular emphasis on Native…- behavioral /social science research tag
- culture
- data collection methodology /evaluation
- Decision Making
- Ethics
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Grant Abstract
Haplotype Mapping and U.S. Chinese Community Engagements (HAPMAP)
Some socially identifiable groups have historically perceived genetic research with considerable mistrust. For this reason, and to better understand the salience of community-based ethical, legal and…- behavioral /social science research tag
- Belief
- biotechnology
- blood chemistry
- Chinese American
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Video
February 2025 EFF: Building Infrastructures to Enhance Community Engagement Work
This ELSI Friday Forum was co-hosted with The Broad Institute. Community engagement is increasingly seen as a necessary component of genetic and genomic research. One major rationale for community…- community building
- Research Infrastructure
- Community Engagement
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Research Tool
Sharing Power with Communities in Priority-Setting for Health Research Projects: A Toolkit
Pratt developed Sharing Power with Communities in Priority-Setting for Health Research Projects (a set of four worksheets and a companion document available in this database), following consultation… -
Grant Abstract
Engaging Minority Communities in Genetics Policy Making
This renewal project, conducted by a consortium of three universities (University of Michigan, Michigan State University and Tuskegee University) will develop a process for engaging minority…- African American
- Attitude
- behavioral /social science research tag
- community
- Decision Making