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Grant Abstract
A Paradigm Approach to Ethical Problems in Genetics
This project utilizes a method of ethical analysis described as 'paradigm analysis' to develop a comprehensive and systematic framework for ethical issues raised by genomic information in…- behavioral medicine
- Ethics
- gene therapy
- Genetic Counseling
- genetic disorder
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Video
September 2024 ELSI Friday Forum: Enhancing Access for Historically Marginalized Populations using the Translational Genomics Pipeline
In an era where genomic medicine promises to transform healthcare with cutting-edge treatments and personalized care, it is crucial to ensure these advancements are accessible to all, particularly…- Genomic medicine
- marginalized population
- access disparities
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News
Collaborating with CERA
How can I collaborate with CERA? The Center for ELSI Resources and Analysis (CERA) is pleased to collaborate with individuals and organizations who share the mission of enhancing the production,… -
Grant Abstract
Genetics, Vulnerable Populations and Health Disparities
The ultimate aim of genetic research is to improve human health and prevent disease. One key measure of success in translating new genetic knowledge into improved health will be the extent to which…- Asthma
- behavioral /social science research tag
- Clinical Research
- Diabetes Mellitus
- Ethics
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Grant Abstract
The Effect of Electronic Informed Consent Information (EICI) on Residual Newborn Specimen Research
Obtaining adequate informed consent from potential research participants is a significant challenge for biobank-dependent research. To maintain public trust and support, it is important to establish…- Attitude
- Authorization documentation
- Award
- base
- biobank
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Publication
Learning from our patients: Utilizing the expertise of transgender and/or gender diverse educators to build an inclusive learning cycle
Journal of Genetic Counseling -
Publication
Deliberative public consultation via deliberative polling: Criteria and methods
Hastings Center Report -