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Publication
Bioethics in China’s Biosecurity Law: Forms, effects, and unsettled issues
Journal of Law and the Biosciences -
News
Just Funded
Our Just Funded feature is a listing of ELSI grants that were recently awarded by the National Human Genome Research Institute (NHGRI). If we missed your grant, please email us at info@… -
Grant Abstract
Multidisciplinary Study of Race Appearance Ancestry Discrimination & Prejudice
The U.S. civil rights movement took place nearly a half century ago, yet significant racial disparities persist in health and justice. The elimination of these disparities is a goal shared by many,…- Address
- American
- Anthropology
- Appearance
- Appointment
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News
ELSIconversations ELSIcon2022 Series
This series included selected recordings from the 2022 ELSI Congress, grouped by topic into four one-hour discussion and networking sessions. The presentation authors briefly recapped their… -
News
ELSIconversations ELSIcon2022 Series
This series included selected recordings from the 2022 ELSI Congress, grouped by topic into four one-hour discussion and networking sessions. The presentation authors briefly recapped their… -
Collection
Human Gene Editing and the Ethics of Enhancement
Over the past decade, a new generation of precise and efficient gene editing techniques has brought new urgency and attention to the discussion of the ethics of human enhancement. In 2015, gene…- Genetic Enhancement
- human genome editing governance
- Eugenics
- Health Equity
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Publication
Ethical considerations related to return of results from genomic medicine projects: The eMERGE network (phase III) experience
Journal of Personalized Medicine -
News
Navigating Consumer Protections for Genomics and Precision Health: An Interview with Jennifer K. Wagner and Abdulai I. Rashid
Despite their increasingly critical importance, consumer protections available from the Federal Trade Commission (FTC) and state Attorneys General related to the direct-to-consumer genomics and… -
Publication
Genomic data as a national strategic resource: Implications for the genomic commons and international data sharing for biomedical research and innovation
Journal of Law, Medicine & Ethics -
Video
Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities
ELSI Friday Forum • May 14, 2021 Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and…- Indigenous Communities
- Alaska Native/American Indian Health Research
- genomic data sharing policy
- data sovereignty