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Publication
Regulatory barriers to US-China collaboration for generative AI development in genomic research
Cell Genomics -
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Publication
Infrastructuring precision medicine: Making gene therapies for rare diseases workable in practice
Social Science in MedicineWadmann and colleagues describe the work required to fit the first two clinically available in-vivo gene therapies into the publicly funded Danish healthcare system. -
Publication
Prenatal and pre-implantation genetic testing for monogenic disorders for germline cancer susceptibility gene variants: summary of the UK British Society for Genetic Medicine joint consensus guidance
Obstetrics, Gynaecology & Reproductive Medicine -
Publication
Spotlighting structural constraints on decisions about participation in genomic and precision medicine
AJOB Empirical Bioethics -
Publication
Addressing 6 challenges in generative AI for digital health: A scoping review
PLOS Digital Health -
Publication
Understanding the gap: A cross-sectional survey of ELSI scholars’ dissemination practices and translation goals
AJOB Empirical Bioethics -
Video
May 2024 ELSI Friday Forum: Patients as Partners in Sickle Cell Disease Research in Africa: Ethos, Challenges and Lessons Learned
Health research is undergoing a gradual but transformative shift, where patients and study communities no longer want to be passive participants in health research but active collaborators. However,…- ELSI
- Sickle Cell
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News
Finale Meeting of the NHGRI Centers of Excellence in Ethical, Legal and Social Implications (ELSI) Research (CEER) Program
The Centers for Excellence in ELSI Research (CEER) Program, a set of research centers across the United States funded by the National Human Genome Research Institute (NHGRI) to promote interaction…- CEER
- NHGRI
- Trainees
- relationship building
- embedded ELSI