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News
EFF Resources - Rigor, Reproducibility and Responsibility: ELSI Questions in Population Data Practices
Session Title: Rigor, Reproducibility and Responsibility: ELSI Questions in Population Data PracticesDate and time: Friday, May 13, 2025 | 12pm ET US / 9am PT USModerator: Aliya Saperstein… -
Video
Revisiting the Rise of Population Genomic Screening through Multiple Perspectives
ELSI • GC Exchange, hosted by The Jackson Laboratory for Genomic Medicine, is an educational series designed for genetic counselors. This series provides a unique opportunity to earn Category 1…- genetic counselor
- Population screening
- Genomic Screening
- healthy population
- sequencing program
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News
CERA featured in GenePod Episode
CERA and ELSI Journal Club were featured in the most recent episode of GenePod, the podcast of Genetics in Medicine. Yvonne Bombard, PhD, and Chloe Mighton, PhD, discussed the featured paper from… -
Additional Resource
Ethics and Genomics Syllabus
This course developed by Vardit Ravitsky, PhD, and Ingrid Holm, MD, MPH, explores the science, the ethical debates and the main policy approaches to well-established and emerging genomics…- non-invasive prenatal testing
- Direct to Consumer Genetic Testing
- donor conception
- CRISPR-Cas9
- germline gene editing
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In the Media
The Ethical Minefield of Testing Infants for Incurable Diseases
The New York Times |Screening can now determine their risk for an ever-growing list of conditions — including ones we can’t do much about.- Polygenic Screening of Embryos
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News
Resources to Navigate Evolving NIH Policy Changes
CERA is pleased to share the following NIH websites which were compiled by NHGRI to help extramural training grantees navigate policy and application changes. Visit the Notices of NIH Policy… -
Video
May 2025 ELSI Journal Club: Parents’ perceptions of the utility of genetic testing in the NICU
Featured Article: Callahan, KP., Mueller, R., Joffe, S., Skraban C, Spinner, NB., Crew, K., Clapp, J., Munson, D., Feudtner, C. Parents' perceptions of the utility of genetic testing in the NICU. (… -
News
May 2025 ELSI Journal Club Resources
Session’s Featured Paper: Parents’ perceptions of the utility of genetic testing in the NICU Date and time: Friday, May 30, 2025 | 12pm ET US / 9am PT US Featured Author: Katharine Press… -
Event
Rigor, Reproducibility and Responsibility: ELSI Questions in Population Data Practices
As large-scale genomic data sets are increasingly linked, harmonized, and repurposed across studies, questions about how to meaningfully define and compare population descriptors have taken on… -