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Video
Autism Genomics Research: Parents’ Views on Genetic Results and Autistic Representation
ELSI Friday Forum • March 11, 2022 Decades of research into the genetics of autism suggest that genes play a significant but also complex role in autism. Studies of the experience of families…- autism
- autistic representation
- autistic genomics research
- genetic diagnosis
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Grant Abstract
Conceptual Frameworks for Genetics Policy
The purpose of this project is to analyze various conceptual frameworks for the development of policy with respect to genetics research, counseling, testing, screening, treatment and use of genetic…- Diagnostic tests
- Ethics
- Genetic Counseling
- Genetic Models
- Genetics
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Grant Abstract
Criminal Justice Applications of Genetic Information
The long-term objective of this project is to develop a comprehensive analysis of the emergence of a new technological regime in criminal identification constructed around genetic information. The…- behavioral /social science research tag
- Behavioral Genetics
- biotechnology
- criminal behavior
- criminology
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Grant Abstract
Genetics, Vulnerable Populations and Health Disparities
The ultimate aim of genetic research is to improve human health and prevent disease. One key measure of success in translating new genetic knowledge into improved health will be the extent to which…- Asthma
- behavioral /social science research tag
- Clinical Research
- Diabetes Mellitus
- Ethics
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Additional Resource
Workshop Proceedings, Governance of Dual Use Research in the Life Sciences Advancing Global Consensus on Research Oversight, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2018)
This National Academies Press publication summarizes the proceedings of a workshop that explored the essential elements of governance for such research. The workshop was hosted by the Croatian…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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News
Value Ethics: Mapping Strategies for Value Assessment and Reimbursement of Targeted Genomic Therapies for Rare Diseases – A New CERA Working Group
CERA Working Groups are interdisciplinary teams that aim to deepen our understanding of emerging, high priority, or understudied ELSI issues using innovative approaches. CERA selects one or two…- genetic therapy
- cost of gene therapies
- working group
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Publication
Demographic characteristics associated With perceptions of personal utility in genetic and genomic testing
JAMA Network Open -
Grant Abstract
Digital Image Archive on the American Eugenics Movement
This project proposes to develop a searchable archive of images illustrating the American Eugenics Movement for use by students, educators, and others concerned with the ethical, legal, and social…- Archives
- behavioral /social science
- Behavioral Genetics
- bioimaging /biomedical imaging
- computer human interaction