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Publication
Translational research and health equity: Gene therapies for sickle cell disease as a case study
Ethics & Human Research -
Publication
Ethical and social implications of public-private partnerships in the context of genomic/big health data collection
European Journal of Human Genetics -
Publication
Views of genetic testing for autism among autism self-advocates: A qualitative study
AJOB Empirical Bioethics -
News
What is the Genomics and Society Working Group at NHGRI?
The Genomics and Society Working Group (GSWG) is the oldest of four working groups established by National Advisory Council for Human Genome Research (NACHGR) (also known as “the council”) to provide… -
News
ELSI in Review • May 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our May 2024 set explores parental perspectives on early life… -
Video
April 2024 ELSI Friday Forum: Why Film and TV? ELSI Research and the Public Imagination
The study of genetics has long been viewed through the lens of mass media and entertainment, and as the field has progressed in recent decades, its portrayal in media, television, and film has also…- ELSI
- Humanities
- genetics and media
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Scholar
Maria Sharmila Alina de Sousa
- Precision population health
- cancer genetics
- Bioethics
- Health Technology Assessment
- Evidence for policy