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151 - 160 of 7195 Topics
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Publication
Development of a consent resource for genomic data sharing in the clinical setting
Genetics in Medicine -
Publication
Overcoming challenges associated with broad sharing of human genomic data
Nature Geneticsby Jonathan E. LoTempio & Jonathan D. Moreno -
Publication
Navigating university openness in research policy inconsistent with Indigenous data sovereignty: A case analysis
Ethics & Human ResearchWick and colleagues recommend that university openness in research policies explicitly recognize tribal rights to self-determination and research sovereignty and be developed in consultation with… -
Publication
Bridging the European data sharing divide in genomic science
Journal of Medical Internet Research -
Publication
Secondary use of genomic data: Patients’ decisions at point of testing and perspectives to inform international data sharing
European Journal of Human Genetics -
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Video
Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities
ELSI Friday Forum • May 14, 2021 Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and…- Indigenous Communities
- Alaska Native/American Indian Health Research
- genomic data sharing policy
- data sovereignty
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Publication
Prepublication data sharing
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Data sharing for public health research: A qualitative study of industry and academia
Communication & Medicine