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Grant Abstract
Enhancing Diversity among Future ELSI Researchers
The proposed R25 Research Education Program is devoted to building a 15-month research mentorship program at the Johns Hopkins Berman Institute of Bioethics (BI) for students from diverse,…- Area
- Baltimore
- Bioethics
- career
- cohort
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Publication
ELSI 1990-1995: A review of the ethical, legal, and social implications research program and related activities
National Center for Human Genome ResearchDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
SNAPSHOTs: Expanding ELSI Education
Announcing the Personal Genetics Education Project (pgEd) / CERA Partnership For over a decade, Marnie Gelbart, Ph.D., Director of Programs at the Personal Genetics Education Project (pgEd) in the… -
Research Tool
Questionnaire: “Data in question. ELSI Challenges in Biobank-based Research”
Goisef and colleagues developed a survey for professionals working in research-based biobanks in Europe that assess their satisfaction with current ELSI-related procedures. Topics assessed include:… -
Grant Abstract
Mapping an ELSI-integrated translational pathway with cell-free fetal DNA testing
The objective of this training and research project is to develop the candidate into an independent and interdisciplinary ELSI researcher, with the ability to intertwine qualitative empirical with…- abortion
- Adopted
- Adoption
- Alleles
- Amniocentesis
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Video
ELSI Friday Forum: Structural Racism and Genomics in the Time of COVID
The 30th anniversary of the Human Genome Project comes at a moment of unprecedented international crisis. The coronavirus now accounts for over one million deaths worldwide and has ravaged…- structural racism
- ELSI Genomics
- Covid-19
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News
Finale Meeting of the NHGRI Centers of Excellence in Ethical, Legal and Social Implications (ELSI) Research (CEER) Program
The Centers for Excellence in ELSI Research (CEER) Program, a set of research centers across the United States funded by the National Human Genome Research Institute (NHGRI) to promote interaction…- CEER
- NHGRI
- Trainees
- relationship building
- embedded ELSI
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Video
Genomic Imaginaries: Sparking Dialogue between ELSI and Literary Studies
ELSI Friday Forum • February 11, 2022 As long as genetics research has been pursued, authors within and outside of the scientific establishment have crafted narratives to make sense of…- Humanities
- Post-genomics
- Literature and genetics
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Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT SUMMARY/ABSTRACT Substantial resources have been devoted to policy evaluation of clinical genomic sequencing that hinge on the conceptualization and measurement of utility. However, most… -
News
ELSI-related Presentations at ASHG 2021
ASHG Annual Meeting • Oct 18-22, 2021 Please email [email protected] with any questions or to add any missing talks All times are in Eastern Time Awards Congratulations to all the 2021…- ELSI
- ASHG