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Video
1. ELSI Research Funding through NIH and NHGRI: An Introduction
Updated on 6/28/2022 | Uploaded on 11/6/2020 This is the first of a series of videos designed to provide guidance on the various steps involved in developing and submitting a grant application to…- Grantsmanship
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Grant Abstract
Mapping an ELSI-integrated translational pathway with cell-free fetal DNA testing
The objective of this training and research project is to develop the candidate into an independent and interdisciplinary ELSI researcher, with the ability to intertwine qualitative empirical with…- abortion
- Adopted
- Adoption
- Alleles
- Amniocentesis
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Research Tool
Questionnaire: “Data in question. ELSI Challenges in Biobank-based Research”
Goisef and colleagues developed a survey for professionals working in research-based biobanks in Europe that assess their satisfaction with current ELSI-related procedures. Topics assessed include:… -
News
New: Publication Opportunities
CERA has expanded our partnership with The American Journal of Bioethics (AJOB) and entered new partnerships with Genetics in Medicine (GiM) and The American Journal of Human Genetics (AJHG) to offer… -
News
SNAPSHOTs: Expanding ELSI Education
Announcing the Personal Genetics Education Project (pgEd) / CERA Partnership For over a decade, Marnie Gelbart, Ph.D., Director of Programs at the Personal Genetics Education Project (pgEd) in the… -
Publication
Charting the ethical frontier in newborn screening research: Insights from the NBSTRN ELSI researcher needs survey
Int J Neonatal Screen -
Video
December 2024 EFF: Building a Diverse ELSI Workforce: What does this mean and how should we do it?
Bioethics as a field was catalyzed by grave injustices such as the US Public Health Service Untreated Syphilis Study at Tuskegee. Similarly, a major rationale for ELSI was to address the injustices…- diversity
- challenges
- Engaging diverse communities
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Video
ELSI Friday Forum: Structural Racism and Genomics in the Time of COVID
The 30th anniversary of the Human Genome Project comes at a moment of unprecedented international crisis. The coronavirus now accounts for over one million deaths worldwide and has ravaged…- structural racism
- ELSI Genomics
- Covid-19
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Additional Resource
White Paper, Learning, Vision, and Approach for Addressing Current and Emergent Issues: Ethical, Legal and Social Implications (ELSI) Considerations for the All of Us Research Program and Opportunities for ELSI Research, All of Us Research Program (2019)
This November 2020 white paper from the All of Us Research Program, funded by the National Institutes of Health (NIH), details key insights from the 2019 ELSI Research Priorities Workshop and…- white paper
- All of Us
- research program
- NIH
- ELSI research