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Video
ELSI and the New Precision Stewards?
ELSIcon2022 • Pre-recorded Paper Karen Meagher, PhD - Mayo Clinic Sara Watson ELSI and the New Precision Stewards? Advances in pathogen genomics and molecular epidemiology are keeping…- Population Genetics
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Research Tool
Setting up a Biorepository (Video), The VALUES Project, The VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was… -
Research Tool
Oversight (Video), The VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was… -
Research Tool
Consent (Video), The VALUES Project, The VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was… -
Research Tool
Security and Privacy (Video), The VALUES Project, The VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was… -
Research Tool
Willingness to Participate in a Precision Medicine Cohort Study, Survey
This survey assesses support for and willingness to take part in a cohort study, aspects of participation, study oversight (including participant involvement in governance), and the return of… -
Grant Abstract
Understanding the Expectations and Needs of Diverse Communities for Navigating Research Results
PROJECT NARRATIVE This application builds on the R01 study the Ethics of Inclusion: Diversity in Precision Medicine Research and aims to investigate the preferences of African American and Hispanic/…- Address
- African American
- All of Us Research Program
- American
- behavioral health
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Publication
A view on genomic medicine activities in Africa: Implications for policy
Frontiers in Genetics -
Grant Abstract
Consumer Protections for Genomics and Precision Health
PROJECT NARRATIVE Consumer protections are of rising importance to the sustainability of personal genomics and mobile health industries and realization of precision health, yet the extent of consumer…- Accountability
- Address
- Adopted
- Advertising
- Affect