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Video
Part 1. Ethical, Legal and Social Implications (ELSI) on the Frontiers of Precision Medicine Research at National Scale: Experiences of the NIH All of Us Research Program
Katherine D. Blizinsky, PhD - National Institutes of Health ELSIconversations - April 16, 2021 The NIH All of Us Research Program (AoURP) aims to collect genomic, biological, environmental, and…- precision medicine research
- precision medicine
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Video
Part 2. Ethical, Legal and Social Implications (ELSI) on the Frontiers of Precision Medicine Research at National Scale: Experiences of the NIH All of Us Research Program
Subhashini Chandrasekharan, PhD and Katherine D. Blizinsky, PhD - National Institutes of Health ELSIconversations - April 16, 2021 The NIH All of Us Research Program (AoURP) aims to collect genomic…- precision medicine
- precision medicine research
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Publication
Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data
CellMackey and colleagues describe how Indigenous data sovereignty (IDS) principles could be operationalized with blockchain technology. -
Additional Funding Resource
NIH Grants Process Overview
Overview of the steps of the NIH grant development, submission, review, and award process from start to finish. -
Publication
Harnessing and sharing the benefits of state-sponsored research: Intellectual property rights and data sharing in California's stem cell initiative
Berkeley Technology Law JournalDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Leveraging algorithms to improve decision-making workflows for genomic data access and management
Biopreservation and Biobanking -
Publication
Sharing health data and biospecimens with industry - A principle-driven, practical approach
New England Journal of Medicine -
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Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty