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Grant Abstract
Understanding the Expectations and Needs of Diverse Communities for Navigating Research Results
PROJECT NARRATIVE This application builds on the R01 study the Ethics of Inclusion: Diversity in Precision Medicine Research and aims to investigate the preferences of African American and Hispanic/…- Address
- African American
- All of Us Research Program
- American
- behavioral health
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Additional Resource
Workshop Proceedings, Understanding Disparities in Access to Genomic Medicine, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2018)
This National Academies of Sciences, Engineering, and Medicine publication provides a description of the proceedings of a June 27, 2018 public workshop organized by the Roundtable on Genomics and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Video
ELSI and the New Precision Stewards?
ELSIcon2022 • Pre-recorded Paper Karen Meagher, PhD - Mayo Clinic Sara Watson ELSI and the New Precision Stewards? Advances in pathogen genomics and molecular epidemiology are keeping…- Population Genetics
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Publication
Thought-leader perspectives on risks in precision medicine research
Cambridge University Press -
Publication
Importance of including non-European populations in large human genetic studies to enhance precision medicine
Annual Review of Biomedical Data Science -
Grant Abstract
Understanding All of Us Enrollees and Decliners Motivations to Enhance Recruitment and Retention
PROJECT NARRATIVE The proposed study contributes to the long-term goal of advancing diverse participation in precision medicine research by mapping the contours of why people, especially African…- African American
- All of Us Research Program
- American
- Biological
- Biomedical Research
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Publication
A view on genomic medicine activities in Africa: Implications for policy
Frontiers in Genetics