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  • Publication

    Parents' responses to disclosure of genetic test results of their children

    American Journal of Medical Genetics
    Grosfeld, Frans J.M., Beemer, Frits A., Lips, Cornelis J.M., Hendriks, Karin S.W.H., ten Kroode, Herman F.J.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Parents' responses to their child's diagnosis of neurofibromatosis 1

    American Journal of Medical Genetics
    Ablon, Joan
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Iceland's health sector database: A significant head start in the search for the biological grail or an irreversible error?

    American Journal of Law and Medicine
    Jonatansson, Hrobjartur
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Informed consent for human genetics research

    American Journal of Human Genetics
    McCabe, L., Grody, W. W., Henker, B., Jaenicke, C., Peckman, S., Sparkes, R. S., Wiley, F., McCabe E. R. B.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Triumph or tragedy? The moral meaning of genetic technology

    American Journal of Jurisprudence
    Kass, Leon R.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Genetic testing should not be advocated as a diagnostic tool in familial forms of dementia

    American Journal of Human Genetics
    Croes, Esther A., Dermaut, Bart, Van der Cammen, Tischa J. M., Van Broeckhoven, Christine, Van Duijn, Cornelia, Finckh, Ulrich, Muller-Thomsen, Tomas, Mann, Ulrike, Eggers, Christian, Marksteiner, Josef, Meins, Wolfgang, Binetti, Giuliano, Alberici, Antone
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Parental attitudes toward genetic testing for pediatric deafness

    American Journal of Human Genetics
    Brunger, Jeanne Weir, Murray, Gail S., O'Riordan, Maryann, Matthews, Anne L., Smith, Richard J. H., Robin, Nathaniel H.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    ASHG/ACMG statement: Genetic testing in adoption

    American Journal of Human Genetics
    American Society of Human Genetics. Committee on Social Issues; American College of Medical Genetics. Committee on Social, Ethical, and Legal Issues
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Cultural and ethical issues associated with subjects participation in genetic family studies

    American Journal of Human Genetics
    Arar, Nedal H., Plaetke, R., Hazuda, H., Duggirala, R., Pergola, P., Kasinath, B., Stern, M., Abboud, Hanna E.
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Statement on gene therapy, April 2000

    American Journal of Human Genetics
    American Society of Human Genetics. Board of Directors
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…