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221 - 230 of 7311 Topics
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Publication
Streamlining the ethical-legal governance of cross-border health data sharing during global health emergencies
Research Ethics -
Grant Abstract
Implementation of an impact assessment tool to optimize responsible stewardship of genomic data in the cloud
PROJECT NARRATIVE Cloud computing promises to scale up storage, analysis and sharing of health data needed to accelerate research in genomics and precision medicine but methods for evaluating how…- Data science
- bioethics
- Algorithms
- Delphi Study
- computerized tools
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Research Tool
Data Sharing Video for American Indian and Alaska Native Participants, All of Us Research Program
This 29 second video provides information for American Indian and Alaska Native participants about the construction of public and scientific databases of participant data by the All of Us Research… -
Publication
Managing the challenges of paying for gene therapy: Strategies for market action and policy reform in the United States
Journal of Comparative Effectiveness Research -
Publication
Managing incidental findings and research results in genomic research involving biobanks and archived data sets
Genetics in Medicine -
Publication
Comparing attitudes about genomic privacy and data sharing in adolescents and parents of children enrolled in a genomic research repository
AJOB Empirical Bioethics -
Publication
Breast cancer: NIH gets a share of BRCA1 patent
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Perspectives on precision medicine in a tribally managed primary care setting
AJOB Empirical Bioethics -
Grant Abstract
After the Golden State Killer: Public Preferences and Policy Implications of Police Use of Genetic Data (The ForenSeq Study)
PROJECT NARRATIVE Investigative genetic genealogy, a technique used by law enforcement to generate leads in criminal cases through searches of genetic genealogy databases, raises important privacy…- Adopted
- base
- California
- clinical care
- Clinical Research
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Publication
Opening stem cell research and development: A policy proposal for the management of data, intellectual property, and ethics
Yale Journal of Health Policy, Law, and EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…