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Publication
Procedure to protect confidentiality of familial data in community genetics and genomic research
Clinical GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Reporting, appraising, and integrating data on genotype prevalence and gene-disease associations
American Journal of EpidemiologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Quality control of phenotypic forms data in the Type 1 Diabetes Genetics Consortium
Clinical trialsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
The Genie Is Out of the Bottle for Polygenic Screening of Embryos: Where To From Here?
The ELSI Friday Forum was held on Friday, March 10, 2023. A growing number of private companies are offering prospective parents using in-vitro fertilization polygenic screening of embryos to…- Polygenic Screening of Embryos
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Publication
Evaluation of a shared decision making program for women suspected to have a genetic predisposition to breast cancer: Preliminary results
Medical Decision MakingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
International egg-sharing to provide donor oocytes for clinical assisted reproduction and derivation of nuclear transfer stem cells
Reproductive BioMedicine OnlineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Promoting human wellness: New frontiers for research, practice, and policy
University of California PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
American Indian health: Innovations in health care, promotion, and policy
Johns Hopkins University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Applying the genome to national drug formulary policy in the developing world
PharmacogenomicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Research Tool
Genomic Information and the Right Not to Know Questionnaire
Flatau and colleagues developed this survey to assess informational preferences among German patients, healthcare professionals, and members of the public in a genetic testing context. The survey…