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Publication
Ethical considerations in clinical trials for rare genetic diseases: The case of Huntington's disease
The American Journal of Bioethics -
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The other side of the self-advocacy coin: How for-profit companies can divert the path to justice in rare disease
The American Journal of Bioethics -
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Who is responsible for promoting equity in rare disease research?
The American Journal of Bioethics -
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Addressing the burdens that newborn screening imposes on underserved communities
The American Journal of Bioethics -
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Imperfect methods for imperfect democracies: Increasing public participation in gene editing debates
The American Journal of Bioethics -
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Deliberative mini-publics and equity: Procedural benefits and promising outcomes for gene editing
The American Journal of Bioethics -
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Public engagement in shaping bioethics policy: Reasons for skepticism
The American Journal of Bioethics -
Publication
STS and bioethics: Forging new synergies for exploring the potentials and pitfalls of public engagement with new biotechnologies
The American Journal of Bioethics