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Publication
Informational content, literacy demands, and usability of websites offering health-related genetic tests directly to consumers
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Comment on the impact of gene patents and licensing practices on access to genetic testing: Lessons from hereditary hemorrhagic telangiectasia
Genetics in medicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Myriad Genetics: In the eye of the policy storm
Genetics in medicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Carrier testing for spinal muscular atrophy
Genetics in medicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The rules remain the same for genomic medicine: The case against "reverse genetic exceptionalism"
Genetics in medicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Impact of gene patents and licensing practices on access to genetic testing for hereditary hemochromatosis
Genet MedDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Committee report: Method for evaluating conditions nominated for population-based screening of newborns and children
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Consumer perceptions of direct-to-consumer personalized genomic risk assessments
Genetics in medicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Simplifying informed consent for biorepositories: Stakeholder perspectives
Genetics in medicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Long-term follow-up of newborn screening patients
Genetics in medicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…