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Publication
Research participants’ experiences with return of genetic research results and preferences for web-based alternatives
Molecular Genetics & Genomic Medicine -
Publication
Summary of the experiences, knowledge, medical management, and family communication of monoallelic MUTYH carriers
Journal of Genetic Counseling -
Publication
Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: “Not weak or fragile?”
Journal of Genetic Counseling -
Publication
Parent perspectives on disclosing a pediatric neurofibromatosis type 1 diagnosis
Journal of Genetic Counseling -
Publication
Medicare beneficiary barriers to genetic counselor services: Implications for patient policy, decision-making, and care
Journal of Genetic Counseling -
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Publication
Australian public perspectives on genomic data governance: Responsibility, regulation, and logistical considerations
European Journal of Human Genetics -
Publication
Sudden cardiac death in the young: A qualitative study of experiences of family members with cardiogenetic evaluation
Journal of Genetic Counseling -
Publication
Experiences of pregnant women with genome-wide non-invasive prenatal testing in a national screening program
European Journal of Human Genetics -
Publication
Non-invasive prenatal testing in Germany: A unique ethical and policy landscape
European Journal of Human Genetics