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27061 - 27070 of 27139 Topics
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Grant Abstract
Developing Evidence-Based Guidance for Engaging Rural Residents in the Deep South in Genomics Research: A Stakeholder-Driven Perspective
Narrative The diversification of genomics research cohorts is a national priority intended to accelerate research and improve individualized prevention, treatment and care. Concrete, tailored…- Accountability
- Alabama
- Attention
- behavioral sciences
- biobank
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Grant Abstract
Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers
Project Narrative This project will identify and reduce ethical and practical barriers to sharing qualitative research data. It will develop new resources to increase data sharing in an ethical…- Addiction
- Address
- Adoption
- Algorithms
- Attitude
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Grant Abstract
Intergenerational Monitoring in Clinical Trials of Germline Gene Editing: Ethical, Legal, and Social Issues
Project Summary The breakneck pace of development towards potential uses of germline gene editing (GGE) in medicine raises some very crucial ethical questions. Though much research still needs to be…- biobank
- Bioethical Issues
- Bioethics
- Bioethics Consultants
- Cell Therapy
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Publication
To be or not to be (honest): The persistent problem of misattributed paternity
Journal of Genetic Counseling -
Publication
The person-affecting/identity-affecting distinction between forms of human germline genome editing is useless in practical ethics
American Journal of Bioethics -
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Publication
Lessons learned from a study of genomics-based carrier screening for reproductive decision making
Health Aff (Millwood) -
Publication
Testing healthy children and adolescents: Recommendations for avoiding harm
The Genetic Resource -
Video
ELSIcon2024: Beneficial engagement with Indigenous Peoples: A survey of Tribal research governance in the United States
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Ibrahim Garba, SJD (he/him/his) – University of Arizona Scientific studies with Indigenous Peoples have sometimes been termed…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- Indigenous communities collaboration
- Law, regulation, and governance
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Video
ELSIcon2022 Paper: An ELSI-informed strategy to use DNA data for humanitarian family reunifications
ELSIcon2022 • Paper • May 31, 2022 Sara H Katsanis, Diana Madden Family separation—whether caused by armed conflict, repressive regimes, disasters, or immigration policies—is traumatic for…- Live
- Paper
- Data and data stewardship
- identity