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Video
Studying America’s Eugenics Era through an ELSI Lens: Data, Context, and Relevance
We present innovative interdisciplinary research on the history of eugenic sterilization in the 20th century US, with the objective of showcasing new approaches in methodology and dissemination, and… -
SNAPSHOT
Could a Deadly Disease be Prevented by Editing the Genome of the Cassava Plant?
In the past decade, scientists have developed new tools for editing the DNA of living organisms, and these tools can be applied to all living organisms including the food supply. In this case study…- Gene Editing
- Agricultural Ethics
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Research Tool
CSER Phase 1: Personalized Medicine Based on Molecular Profiling of Pediatric and Young Adult Patients with Cancer Study Protocol
The Personalized Medicine Based on Molecular Profiling of Patients with Cancer implements a mechanism for patients who have advanced or refractory cancer to undergo tumor sequencing, sequence… -
Grant Abstract
Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers
This project will identify and address ethical and practical barriers to qualitative data sharing (QDS) in health sciences research. Qualitative research has unique value in understanding health…- Algorithms
- Attitude
- base
- Bioinformatics
- Case Study
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Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty
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Video
ELSIcon2022 Paper: Population Frequencies of Hereditary Cancer Gene Variants in Diverse Population Groups
ELSIcon2022 • Paper • May 27, 2022 Janis Geary, Kara Hapke, Robert Cook Deegan Genetic tests to estimate individual risk of various hereditary cancers have proliferated due to improved sequencing…- Data and data stewardship
- global health
- Paper
- Pre-Recorded
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Publication
A game theoretic approach to balance privacy risks and familial benefits
Scientific ReportsGuo and colleagues use a game theoretic approach to model how consumers of third-party interpretation (TPI) services may act as they weigh the benefits of sharing their genetic data against the… -
Grant Abstract
Gene Tests for Colon Cancer Risk: Psychosocial Studies
The main goal of this proposal is to develop appropriate comprehensive counseling guidelines for predictive colon cancer gene testing by assessing perceptions and attitudes toward the gene tests,… -
Grant Abstract
Microbiome-Based Diagnostics: Stakeholder Perceptions and Implications for the Regulatory Framework
The state of knowledge regarding the human microbiome is advancing rapidly and a burgeoning new area of research and development is microbiome-based diagnostics. There is much that is not yet known…- Award
- Baltimore
- base
- Benefits and Risks
- Bioethics Consultants
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Grant Abstract
Interdisciplinary Center on Epigenetics Science and Society
One of the intended goals of the ELSI CEER program is to provide guidance on policy issues that arise from novel genetic and genomic science and applications. This focus, however, misses epigenetic…- base
- Behavior
- Cancer Diagnostics
- cancer therapy
- Cells