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News
New: Publication Opportunities
CERA has expanded our partnership with The American Journal of Bioethics (AJOB) and entered new partnerships with Genetics in Medicine (GiM) and The American Journal of Human Genetics (AJHG) to offer… -
Video
Visual Storytelling in ELSI Research
The ELSI Friday Forum was held on Friday, April 14, 2023. “A picture is worth a thousand words” - this widely understood sentiment could play a vital role in ELSI research and communication about…- Visual storytelling
- Community Engagement
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Grant Abstract
Clinical Integration of Whole Genome Sequencing: A Policy Analysis
Innovations in next-generation DNA sequencing technologies, accompanied by exponential drops in cost, have made it possible for clinicians to begin to use whole genome sequencing (WGS) to diagnose,…- Agreement
- Area
- Attention
- base
- Clinic
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In the Media
‘All of Us’ reports half of the genomes it has sequenced are from non-Europeans
STAT News |Six years ago, the National Institutes of Health placed its biggest ever bet on precision medicine, launching a study to enroll over 1 million participants in an ambitious data-gathering…- All of Us Research Program
- Pangenome
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Grant Abstract
Regulation of International Direct-to-Participant Genomic Research
New techniques for genomic research are being developed to take advantage of the ability to contact research participants directly, without utilizing physicians, hospitals, or biobanks. Researchers…- American
- biobank
- Biological
- Blood specimen
- Collaborations
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News
EFF Resources - Rigor, Reproducibility and Responsibility: ELSI Questions in Population Data Practices
Session Title: Rigor, Reproducibility and Responsibility: ELSI Questions in Population Data PracticesDate and time: Friday, May 13, 2025 | 12pm ET US / 9am PT USModerator: Aliya Saperstein… -
Grant Abstract
Neurobiological Predictors of Huntington's Disease
The proposal is a longitudinal study of potential neurobiological and neurobehavioral markers of disease onset and progression in pre-symptomatic individuals who have the CAG expansion in the HD gene…- Activities of Daily Living
- Affect
- Anisotropy
- Award
- Behavioral
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Grant Abstract
The Electronic Medical Records and Genomics (eMERGE) Network Phase III - Coordinating Center
The eMERGE project brings together researchers with a wide range of expertise in genomics, statistics, ethics, informatics, and clinical medicine from leading medical research institutions across…- Agreement
- Algorithms
- Arbitration
- biobank
- clinical implementation
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Grant Abstract
Methods for Promoting Public Dialogue on the Use of Residual Newborn Screening
Newborn screening (NBS) is conducted on virtually every child born in the U.S. primarily through state-based public health programs. Following testing, there is blood leftover on each child that is…- Advisory Committees
- Advocate
- Affect
- Attitude
- Authorization documentation
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Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…- Address
- Behavioral
- Biomedical Research
- Categories
- Collection