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News
Ethical Issues in Pediatric Gene Therapy Clinical Trials
The Working Group on Pediatric Gene Therapy and Medical Ethics (PGTME) was created in 2019 to study ethical issues surrounding research in genetic interventions for pediatric populations. The group…- pediatric gene therapy
- Pediatric Research
- Informed Consent
- Research Ethics
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In the Media
Are COVID-19 Swab Samples a Threat to Your DNA Privacy?
Medscape |Arthur L. Caplan, PhD- genetic privacy
- genomic privacy
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In the Media
Joe Biden names top geneticist Eric Lander as science adviser
Nature News |Nidhi Subbaraman & Alexandra Witze- Federal Government
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Scholar
Kimberly Kaphingst
- communication of results
- return of results
- Communication Research
- genetic literacy
- health literacy
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Publication
“It seems like COVID-19 now is the only disease present on Earth”: Living with a rare or undiagnosed disease during the COVID-19 pandemic
Genetics in MedicineHalley and colleagues call for urgent action and attention to the serious challenges posed by the COVID-19 pandemic for people with rare or undiagnosed diseases. -
Publication
Health and economic outcomes of newborn screening for infantile-onset Pompe disease
Genetics in Medicine -
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Publication
Human molecular genetics and genomics — Important Advances and exciting possibilities
The New England Journal of Medicine