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2761 - 2770 of 31512 Topics
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Scholar
Skye A. Miner
- reproductive genetics
- Research Ethics
- Return of results & incidental/secondary findings
- Qualitative Methods
- Gender
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Job Posting
Director, Stanford Center for Biomedical Ethics (SCBE)
The Stanford Center for Biomedical Ethics (SCBE) in the Stanford University School of Medicine, seeks a new Director. The successful candidate will be a…- Biomedical Ethics
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Video
Value and Values in Payment for Gene Therapies
The ELSI Friday Forum was held on May 12, 2023. Advances in gene therapies for monogenic disorders have brought hope of curative treatment. Since the Food and Drug Administration first approved a…- gene therapies
- cost of gene therapies
- payment
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Scholar
Jennifer R Malinowski
- Genetic Testing
- health disparities
- access to healthcare
- patient engagement
- clinical practice guidelines
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Scholar
Wendy Diller
- precision medicine
- Medical Devices
- clinical diagnostics
- Cancer and clinical implementation of genomics
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Collection
Paying for Cures: The Ethics and Economics of Gene Therapies for Rare Diseases
Rare diseases, most of which have a genetic basis, collectively affect an estimated 300 million individuals worldwide and are associated with significant morbidity and mortality. Although less than…- gene therapy
- sickle cell disease
- health economics
- nusinersen
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Publication
Implications of genomic newborn screening for infant mortality
International Journal of Neonatal Screening -
Publication
Ethical considerations of genome sequencing for pediatric patients
Seminars in Pediatric Neurology