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Publication
Exploration of the effects of predictive testing for Huntington disease on intimate relationships
Am J Med Genet -
Publication
Testing healthy children and adolescents: Recommendations for avoiding harm
The Genetic Resource -
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Publication
Data access, ownership, and control: Toward empirical studies of access practices
Knowledge: Creation, Diffusion, Utilization -
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Publication
Alpha 1-antitrypsin deficiency. Impact of genetic discovery on medicine and society
JAMA: The Journal of The American Medical AssociationDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Publication
Discovery, transfer, and diffusion of technologies for the detection of genetic disorders. Policy implications
Int J Technol Assess Health Care -
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Education and testing strategy for large-scale cystic fibrosis carrier screening
J Genet Couns