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Understanding the return of genomic sequencing results process: Content review of participant summary letters in the eMERGE research network

Journal of Personalized Medicine

John A. Lynch, Richard R. Sharp, Sharon A. Aufox, Sarah T. Bland, Carrie Blout, Deborah J. Bowen, Adam H. Buchanan, Colin Halverson, Margaret Harr, Scott J. Hebbring, Nora Henrikson, Christin Hoell, Ingrid A. Holm, Gail Jarvik, Iftikhar J. Kullo, David C. Kochan, Eric B. Larson, Amanda Lazzeri, Kathleen A. Leppig, Jill Madden, Maddalena Marasa, Melanie F. Myers, Josh Peterson, Cynthia A. Prows, Alanna Kulchak Rahm, James Ralston, Hila Milo Rasouly, Aaron Scrol, Maureen E. Smith, Amy Sturm, Kelsey Stuttgen, Georgia Wiesner, Marc S. Williams, Julia Wynn, Janet L. Williams

2020

Publication

Moral concerns and the willingness to donate to a research biobank

JAMA

Tom Tomlinson, Raymond De Vries, Kerry Ryan, Hyungjin Myra Kim, Nicole Lehpamer, Scott Y. H. Kim

2015

Publication

Effect of deliberation on the public's attitudes toward consent policies for biobank research

Eur J Hum Genet

Tom Tomlinson, Raymond G. De Vries, H. Myra Kim, Linda Gordon

2018

Publication

Understanding the public’s reservations about broad consent and study-by-study consent for donations to a biobank: Results of a national survey

PLoS ONE

Raymond G. De Vries, Tom Tomlinson, Hyungjin Myra Kim, Chris Krenz, Diana Haggerty, Kerry A. Ryan, Scott Y. H. Kim

2016

Publication

Lucien Howe, hereditary blindness, and the eugenics movement

JAMA Ophthalmology

James G. Ravin, Alexandra Minna Stern

2010

Publication

Eugenics, sterilization, and historical memory in the United States

História, Ciências, Saúde-Manguinhos

Alexandra Minna Stern

2016

Publication

Possibly positive or certainly uncertain?’: Participants’ responses to uncertain diagnostic results from exome sequencing

Genetics in Medicine

Debra Skinner, Myra I. Roche, Karen E. Weck, Kelly A. Raspberry, A. Katherine M. Foreman, Natasha T. Strande, Jonathan S. Berg, James P. Evans, Gail E. Henderson

2018

Publication

The hour of eugenics

The Hispanic American Historical Review

Alexandra Minna Stern

2011

Publication

Genetics: Ethics, law and policy

West Academic Publishing

Maxwell J. Mehlman, Mark A. Rothstein, Sonia M. Suter

2020

Publication

Who’s on third? Regulation of third-party genetic interpretation services

Genetics in Medicine

Christi J. Guerrini, Jennifer K. Wagner, Sarah C. Nelson, Gail H. Javitt, Amy L. McGuire

2020

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Understanding the return of genomic sequencing results process: Content review of participant summary letters in the eMERGE research network

Moral concerns and the willingness to donate to a research biobank

Effect of deliberation on the public's attitudes toward consent policies for biobank research

Understanding the public’s reservations about broad consent and study-by-study consent for donations to a biobank: Results of a national survey

Lucien Howe, hereditary blindness, and the eugenics movement

Eugenics, sterilization, and historical memory in the United States

Possibly positive or certainly uncertain?’: Participants’ responses to uncertain diagnostic results from exome sequencing

The hour of eugenics

Genetics: Ethics, law and policy

Who’s on third? Regulation of third-party genetic interpretation services

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