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  • Grant Abstract

    Faith Forum on Genetics: An ELSI Educational Intervention for Religious Communities

    This community education intervention is a collaborative initiative between Pacific University, the Pacific Institute for Ethics and Social Policy, and Ecumenical Ministries of Oregon. it is a pilot…
  • Grant Abstract

    Decision Making in Young Women at Risk for HBOC

    Young women with a positive BRCA1 and/or BRCA2 mutation test face a potentially deadly genetic legacy at a developmental critical time in their lives. After learning they are at a high risk for…
  • Grant Abstract

    The ELSI of Genetic Testing in the Workplace

    The objective of this proposal is to begin to anticipate, analyze and address the ethical, legal and social implications of the use of new genetic information and technologies in a critical non-…
  • Grant Abstract

    Moral Distress and Suffering of Genetics Professionals

    Genetic service providers interact with patients who are experiencing profoundly personal and emotional life events. Many interactions occur at the time of diagnosis of a serious or life-threatening…
  • Grant Abstract

    Academic Industry Relationships in Genetics

    The purpose of the proposed investigation is to explore the phenomenon of Academic-Industry Relationships (AIRs) in the life-sciences, with an emphasis in the field of genetics. This study seeks to…
  • Grant Abstract

    A Policy-Oriented History of Newborn Screening for PKU

    Phenylketonuria (PKU) has played a prominent role in the development of modern genetic medicine. Individuals with this rare inherited disease are unable to metabolize phenylalanine, an essential…
  • Grant Abstract

    Managing Incidental Findings in Human Subjects Research

    This 2-year renewal project builds on our previous NHGRI-funded project on "Managing Incidental Findings in Human Subjects Research" (#1 R01 HG003178-01A1). Using that project's…
  • Grant Abstract

    Trust and Genetics Research in Diverse US Communities

    This proposal seeks to build on 4 years of funded work on the ethical, legal, and social implications (ELSI) of genetic research in American Indian and Alaska Native (AI/AN) communities. In the…
  • Grant Abstract

    Criminal Justice Applications of Genetic Information

    The long-term objective of this project is to develop a comprehensive analysis of the emergence of a new technological regime in criminal identification constructed around genetic information. The…
  • Grant Abstract

    Human Genome Project: Community Conversations

    This 3-Year Project (Amended Application) seeks support for an innovative inter-regional public education model, in New York and Arizona, aimed at developing and using public libraries as centers for…