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Grant Abstract
Faith Forum on Genetics: An ELSI Educational Intervention for Religious Communities
This community education intervention is a collaborative initiative between Pacific University, the Pacific Institute for Ethics and Social Policy, and Ecumenical Ministries of Oregon. it is a pilot…- behavioral /social science research tag
- Clinical Research
- education evaluation /planning
- educational resource design /development
- Ethics
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Grant Abstract
Decision Making in Young Women at Risk for HBOC
Young women with a positive BRCA1 and/or BRCA2 mutation test face a potentially deadly genetic legacy at a developmental critical time in their lives. After learning they are at a high risk for…- behavioral /social science research tag
- brca gene
- breast neoplasms
- Clinical Research
- Decision Making
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Grant Abstract
The ELSI of Genetic Testing in the Workplace
The objective of this proposal is to begin to anticipate, analyze and address the ethical, legal and social implications of the use of new genetic information and technologies in a critical non-…- Clinical Research
- Ethics
- Focus Groups
- Genetic Screening
- health related legal
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Grant Abstract
Moral Distress and Suffering of Genetics Professionals
Genetic service providers interact with patients who are experiencing profoundly personal and emotional life events. Many interactions occur at the time of diagnosis of a serious or life-threatening…- Caring
- Child
- Childhood
- Clinic
- Clinical
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Grant Abstract
Academic Industry Relationships in Genetics
The purpose of the proposed investigation is to explore the phenomenon of Academic-Industry Relationships (AIRs) in the life-sciences, with an emphasis in the field of genetics. This study seeks to…- Biology
- biotechnology
- Clinical Research
- Focus Groups
- Genetics
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Grant Abstract
A Policy-Oriented History of Newborn Screening for PKU
Phenylketonuria (PKU) has played a prominent role in the development of modern genetic medicine. Individuals with this rare inherited disease are unable to metabolize phenylalanine, an essential…- adolescence (12-20)
- adult human (21+)
- behavioral /social science research tag
- Behavioral Genetics
- Clinical Research
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Grant Abstract
Managing Incidental Findings in Human Subjects Research
This 2-year renewal project builds on our previous NHGRI-funded project on "Managing Incidental Findings in Human Subjects Research" (#1 R01 HG003178-01A1). Using that project's…- behavioral /social science research tag
- Clinical Research
- confidentiality
- endoscopy
- Ethics
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Grant Abstract
Trust and Genetics Research in Diverse US Communities
This proposal seeks to build on 4 years of funded work on the ethical, legal, and social implications (ELSI) of genetic research in American Indian and Alaska Native (AI/AN) communities. In the…- Address
- Alaska Native
- Alcohol dependence
- Alcoholism
- Alcohols
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Grant Abstract
Criminal Justice Applications of Genetic Information
The long-term objective of this project is to develop a comprehensive analysis of the emergence of a new technological regime in criminal identification constructed around genetic information. The…- behavioral /social science research tag
- Behavioral Genetics
- biotechnology
- criminal behavior
- criminology
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Grant Abstract
Human Genome Project: Community Conversations
This 3-Year Project (Amended Application) seeks support for an innovative inter-regional public education model, in New York and Arizona, aimed at developing and using public libraries as centers for…- biotechnology
- Clinical Research
- education evaluation /planning
- Ethics
- Genetic Screening