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ELSIcon2022 Paper: The definition and handling of genomic data in a digitalized society: A Japanese perspective
ELSIcon2022 • Paper • May 27, 2022 Jusaku Minari The development of genomic research increasingly contributes to the understanding, diagnosis, and treatment of various diseases, including…- Education and public reception of genetic science
- Paper
- Pre-Recorded
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Grant Abstract
DNA Patent Policies at Academic Institutions
The overall goal is to study the licensing policies and practices of 24 academic institutions regarding their DNA-based patents. The proposed project is conceived as a pilot study that will test the…- biotechnology
- DNA
- Genetic Screening
- geographic site
- health care policy
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Grant Abstract
Organizing the HGI: Social Impact and Technology Design
This sociological study is a prospective field research project on the development of the human genome initiative during the first half of the 1990's. The study is examining how the genomics…- comprehensive medical planning
- Decision Making
- Ethics
- Genome
- health /scientific organization
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Collection
Advancing Ethical Engagement and Benefit Sharing Within International Collaborative Genomic Research Partnerships in Africa
Due to advances in genomic sequencing and reduced costs, the development of statistical techniques and technologies for analysis of large datasets, and a scientific interest in population-specific…- ethical engagement
- benefit sharing
- Africa
- Collaborations
- genomic research
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Grant Abstract
Development of recommendations and policies for genetic variant reclassification
Project Narrative Currently, there are marked differences in variant classification among clinical laboratories, and genetic variant classification is currently in flux with improvements in the…- Address
- Adoption
- adverse outcome
- Advocate
- Affect
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Grant Abstract
The ELSI Program: Evidence of Policy Impact
The Ethical, Legal and Social Implications (ELSI) Programs of the National Institutes of Health and Department of Energy were established to address ethical and related issues raised by the Human…- Appearance
- Area
- Case Study
- Communities
- Data
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Grant Abstract
Managing the Uncertainty of Genetic Information in Neonates
PROJECT NARRATIVE Genetic testing is increasingly used in ill neonates and holds promise to improve care, but the uncertainty of many genetic results complicates their application to clinical…- Decision making
- genetic association
- genetic counselor
- exome sequencing
- variant of unknown significance