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ELSIcon2022 Paper: “Big bioethics” research: Is the ELSI community ready?
ELSIcon2022 • Paper • May 31, 2022 Joel Pacyna, Richard Sharp ELSI research has traditionally sought to give patients greater voice—especially patients at the margins of healthcare who may be…- Live
- Paper
- Reflections on the ELSI field
- Genetic testing and screening
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ELSIcon2022 Paper: Attitudes toward and actual uptake of genetic testing among a nationally representative sample of middle-to-older aged U.S. adults
ELSIcon2022 • Paper • May 31, 2022 Drew Blasco, Sara Feldman, J. Scott Roberts Understanding factors that influence genetic testing decisions among older adults is important given emerging…- Live
- Paper
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Panel: Beyond the Binary: A Panel Discussion About Gender, Genomics, and Justice
ELSIcon2022 • Panel Session 3 • May 31, 2022 Leila Jamal, Tala Berro, Kellan Baker, Kimberly Zayhowski The term gender diversity refers to a spectrum of identities that exist on a continuum…- Live
- Panel
- Stigma and discrimination
- health disparities
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ELSIcon2022 Paper: Challenges in Providing Genetic Risk Information to At-Risk Relatives of Patients Who are Deceased: Experiences of the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study
ELSIcon2022 • Paper • May 31, 2022 Sandra Soo-Jin Lee, Jessica Martucci, Yolanda Prado, Tia Kauffman, Larissa White, Nora Henrikson, Heather Feigelson, Jessica Hunter Current guidelines…- Live
- Paper
- Disclosure of genetic risk information to relatives
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Sociodemographic diversity in clinical genomics research
ELSIcon2022 • Paper • May 31, 2022 Meghan Halley, Holly Tabor, Jennifer Young Background: Barriers to clinical genomics research participation are particularly critical for medically…- Live
- Paper
- Motivation to participate in research
- Patient-provider communication
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ELSIcon2022 Paper: The Biologization of Morality: Criminal Justice as a Matter of Public Health
ELSIcon2022 • Paper • May 31, 2022 Zachary Ascherl A growing wealth of literature explains criminal behavior in terms of its environmental, neurological, and genetic causes. Legal practitioners…- Live
- Paper
- Emerging technologies - public opinion and policy
- Law, regulation, and governance
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Video
ELSIcon2022 Paper: When State Laws Conflict: Choice of Law Challenges in Multi-Site Research
ELSIcon2022 • Paper • May 31, 2022 Laura Beskow, Leslie Wolf Our previous research demonstrated that precision medicine research implicates numerous state laws, including human subjects…- Live
- Paper
- Laws and research sites
- precision medicine
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ELSIcon2022 Paper: Genetic testing for hereditary cancer risk in India: A Case Study
ELSIcon2022 • Paper • May 31, 2022 Pooja Chitre, Janis Geary, Robert Cook Deegan India has a distinct history of dynamic migration, cultural and ethnic diversity, and widespread endogamy and…- Live
- Paper
- Data and data stewardship
- Genetic testing and screening
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ELSIcon2022 Paper: Physician and patient perspectives on the role of the microbiome in the prevention and treatment of colorectal cancer: the ethics of uncertainty in emerging science
ELSIcon2022 • Paper • May 31, 2022 Juli Bollinger, Sara Glass, Sheethal Jose, Cynthia L. Sears, Gail Geller Background: Research has found unique populations of bacteria in the gut microbiota…- Live
- Paper
- Emerging technologies - public opinion and policy
- Patient-provider communication
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Video
ELIScon2022 Panel: Polygenic Embryo Screening: Ethical Considerations and Stakeholder Perspectives
ELSIcon2022 • Panel Session 4 • May 31, 2022 Gabriel Lázaro-Muñoz, Stacey Pereira, Todd Lencz, Laura Hercher This panel will examine ethical, scientific, clinical, and social considerations related…- Live
- Panel
- Screening for polygenic conditions and risk scores
- reproductive genetics