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"My research is their business, but I'm not their business”: Patient and clinician perspectives on commercialization of precision oncology data

The Oncologist

Kayte Spector-Bagdady, Chris D. Krenz, Collin Brummel, J. Chad Brenner, Carol R. Bradford, Andrew G. Shuman

2020

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Targeting representation: Interpreting calls for diversity in precision medicine research

Yale Journal of Biology and Medicine

Sandra Soo-Jin Lee, Stephanie M Fullerton, Caitlin E McMahon, Michael Bentz, Aliya Saperstein, Melanie Jeske, Emily Vasquez, Nicole Foti, Larissa Saco, Janet K Shim

2022

Publication

Survey of professionals of the European Public Health Association (EUPHA) towards direct-to-consumer genetic testing

European Journal of Public Health

Flavia Beccia, Ilda Hoxhaj, Michele Sassano, Jovana Stojanovic, Anna Acampora, Roberta Pastorino, Stefania Boccia

2022

Publication

Challenges of secondary finding disclosure in genomic medicine in rare diseases: A nation-wide survey of Japanese facilities outsourcing comprehensive genetic testing

Kana Hiromoto, Takahiro Yamada, Mio Tsuchiya, Hiroshi Kawame, Eiji Nanba, Yuichi Goto, Shinji Kosugi

2022

Publication

Respecting autonomy and balancing benefits by disclosing the secondary finding of Klinefelter’s

American Journal of Bioethics

Skye Adell Miner

2022

Publication

Ethical issues in the US 1956 National Academy of Sciences BEAR I Genetics Panel report to the public

Health Physics

Edward J. Calabrese, James Giordano

2022

Publication

IRBs and the protection-inclusion dilemma: Finding a balance

American Journal of Bioethics

Phoebe Friesen, Luke Gelinas, Aaron Kirby, David H. Strauss, Barbara E. Bierer

2022

Publication

Clarifying the blurry boundaries between research and clinical care

American Journal of Bioethics

Forough Noohi, Lainie F. Ross

2022

Publication

When to disclose a borderline incidental finding

American Journal of Bioethics

Susanna McGrew, Benjamin E. Berkman

2022

Publication

The importance of defining actionability as related to disclosure of secondary findings identified in research

American Journal of Bioethics

Jordan Brown, Dana Howard

2022

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"My research is their business, but I'm not their business”: Patient and clinician perspectives on commercialization of precision oncology data

Targeting representation: Interpreting calls for diversity in precision medicine research

Survey of professionals of the European Public Health Association (EUPHA) towards direct-to-consumer genetic testing

Challenges of secondary finding disclosure in genomic medicine in rare diseases: A nation-wide survey of Japanese facilities outsourcing comprehensive genetic testing

Respecting autonomy and balancing benefits by disclosing the secondary finding of Klinefelter’s

Ethical issues in the US 1956 National Academy of Sciences BEAR I Genetics Panel report to the public

IRBs and the protection-inclusion dilemma: Finding a balance

Clarifying the blurry boundaries between research and clinical care

When to disclose a borderline incidental finding

The importance of defining actionability as related to disclosure of secondary findings identified in research

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Search by Topic

Refine Your Search:

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3681 - 3690 of 31516 Topics

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