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Grant Abstract
Demographic Patterns of Eugenic Sterilization in California
From the passage of the country's first sterilization law in Indiana in 1907 until the 1960s approximately 60,000 people were sterilized based on eugenic criteria that sought to regulate the…- Archives
- base
- California
- Censuses
- Classification
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Research Tool
Utah Genome Project - Informed Consent Form
This consent form was used for the Utah Genome Project. The form describes the specific protected health information that would be collected for the study, how the information would be used, and how… -
Publication
Reproductive health and human rights: Integrating medicine, ethics, and law
Clarendon PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
A Community-Based Approach to Overcoming Barriers to Cascade Screening for Long QT Syndrome
While the value of identifying individuals in the population who carry `actionable' variants and screening their relatives (i.e. cascade screening) is widely acknowledged, there are numerous…- actionable mutation
- Address
- Adrenergic beta-Antagonists
- American
- Amish
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Publication
Ethics in studies on children and environmental health
Journal of Medical EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Health and human rights: Basic international documents
Harvard University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Manual for research ethics committees
Cambridge University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The ethics of biomedical research: An international perspective
Oxford University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical issues in clinical practice: Cases and analyses
Seminars in Pediatric NeurologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Cost-effectiveness of Whole Genome Sequencing of Healthy Adults
PROJECT NARRATIVE The central goal of the proposed research is to determine the cost-effectiveness of integrating whole genome sequencing into the care of healthy adults. We will assess the health…- Address
- Adult
- Area
- base
- behavioral response