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Diversity, profit, control: An empirical study of industry employees' views on ethics in private sector genomics

AJOB Empirical Bioethics

Alexis Walker

2022

The key themes that emerged from Walker’s interviews with members of the U.S. private sector genomics industry were ethical concerns about the lack of diversity in genetic datasets, issues related to…

Publication

The economic, medical and psychosocial consequences of whole genome sequencing for the genetic diagnosis of patients with intellectual disability: The DEFIDIAG Study Protocol

Frontiers in Genetics

Catherine Lejeune, Charley Robert-Viard, Nicolas Meunier-Beillard, Myriam Alice Borel, Léna Gourvès, Stéphanie Staraci, Anne-Laure Soilly, Francis Guillemin, Valerie Seror, Hamza Achit, Marion Bouctot, Marie-Laure Asensio, Anne-Sophie Briffaut, Christelle Delmas, Ange-Line Bruel, Alexia Benoit, Alban Simon, Bénédicte Gerard, Hamza Hadj Abdallah, Stanislas Lyonnet, Laurence Faivre, Christel Thauvin-Robinet, Sylvie Odent, Delphine Heron, Damien Sanlaville, Thierry Frebourg, Jean Muller, Yannis Duffourd, Anne Boland, Jean-François Deleuze, Hélène Espérou, Christine Binquet, Hélène Dollfus

2022

Publication

Genomics and justice: Mitigating the potential harms and inequities that arise from the implementation of genomics in medicine

Human Genetics

A. J. Clarke, C. G. van El

2022

Publication

Considerations of autonomy in guiding decisions around the feedback of individual genetic research results from genomics research: Expectations of and preferences from researchers in Botswana

Global Health, Epidemiology and Genomics

Mary Kasule, Mogomotsi Matshaba, Erisa Mwaka, Ambroise Wonkam, Jantina de Vries

2022

Publication

Participant recall and understandings of information on biobanking and future genomic research: Experiences from a multi-disease community-based health screening and biobank platform in rural South Africa

BMC Medical Ethics

Manono Luthuli, Nothando Ngwenya, Dumsani Gumede, Resign Gunda, Dickman Gareta, Olivier Koole, Mark J. Siedner, Emily B. Wong, Janet Seeley

2022

Publication

Reflex BRCA1 and BRCA2 tumour genetic testing for high-grade serous ovarian cancer: Streamlined for clinicians but what do patients think?

Hereditary Cancer in Clinical Practice

Jeanna M. McCuaig, Sarah E. Ferguson, Danielle Vicus, Karen Ott, Tracy L. Stockley, Raymond H. Kim, Kelly A. Metcalfe

2022

Publication

Walking a fine germline: Synthesizing public opinion and legal precedent to develop policy recommendations for heritable gene-editing

Journal of Bioethical Inquiry

Shawna Benston

2022

Publication

Examining the role of language competency in genetic testing awareness among adults in the United States

Journal of Genetic Counseling

Lauren Passero, Swetha Srinivasan, Megan C. Roberts

2022

Publication

Genetic evaluation for hereditary cancer syndromes among African Americans: A critical review

The Oncologist

Ambreen Khan, Charles R. Rogers, Carson D. Kennedy, AnaMaria Lopez, Joanne Jeter

2022

Publication

Addressing privacy concerns in sharing viral sequences and minimum contextual data in a public repository during the COVID-19 pandemic

Frontiers in Genetics

Lingqiao Song, Hanshi Liu, Fiona S. L. Brinkman, Erin Gill, Emma J. Griffiths, William W. L. Hsiao, Sarah Savić-Kallesøe, Sandrine Moreira, Gary Van Domselaar, Ma'n H. Zawati, Yann Joly

2022

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Diversity, profit, control: An empirical study of industry employees' views on ethics in private sector genomics

The economic, medical and psychosocial consequences of whole genome sequencing for the genetic diagnosis of patients with intellectual disability: The DEFIDIAG Study Protocol

Genomics and justice: Mitigating the potential harms and inequities that arise from the implementation of genomics in medicine

Considerations of autonomy in guiding decisions around the feedback of individual genetic research results from genomics research: Expectations of and preferences from researchers in Botswana

Participant recall and understandings of information on biobanking and future genomic research: Experiences from a multi-disease community-based health screening and biobank platform in rural South Africa

Reflex BRCA1 and BRCA2 tumour genetic testing for high-grade serous ovarian cancer: Streamlined for clinicians but what do patients think?

Walking a fine germline: Synthesizing public opinion and legal precedent to develop policy recommendations for heritable gene-editing

Examining the role of language competency in genetic testing awareness among adults in the United States

Genetic evaluation for hereditary cancer syndromes among African Americans: A critical review

Addressing privacy concerns in sharing viral sequences and minimum contextual data in a public repository during the COVID-19 pandemic

Topics

Search by Topic

Refine Your Search:

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Featured Topics

4271 - 4280 of 31564 Topics

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